Corruption in India

India, before invasion, was renowned as a “golden bird” due to its material prosperity, profound spiritual wisdom, and advanced scientific understanding. From physiology and its inner dimensions to the concept of the multiverse, discussions and innovations were already prevalent. However, this golden age was disrupted by the devastating era of Islamic invasions, leading to widespread destruction. Millions of lives were lost, and countless people were forcibly converted to Islam. It is estimated that over 60,000 Hindu, Jain, and Buddhist temples were razed to the ground.

The destruction of Nalanda University and its incomparable library, along with the countless Jain and Hindu temples sacrificed to build the Qutub Minar, are well-documented tragedies. The suffering endured by the sacred sites of Ayodhya, Mathura, and Varanasi is similarly heart-wrenching. Indeed, the historical atrocities inflicted upon India are vast and complex, defying concise summation. Ultimately, the nation was partitioned, with present-day Pakistan, Bangladesh, and Nepal once forming an integral part of India. Expanding the cultural perspective, Tibet and Afghanistan were also deeply intertwined with the Indian subcontinent.

Following the brutal Islamic era, British colonial rule ensued, often referred to as the “British Raj.” However, many argue it was essentially a “Christian Raj,” with colonial objectives mirroring those of their Muslim predecessors: exploitation of India’s wealth and proselytization of Christianity. While Mother Teresa is celebrated for her humanitarian work, her canonization is often attributed to her role in religious conversion, particularly among the Hindu population.

Her work among the impoverished was undeniably extraordinary, defying verbal description. While her humanitarian efforts were commendable, it’s also acknowledged that her primary objective included proselytizing Christianity, particularly within the Hindu community. Despite the actions of previous rulers, India gained independence on August 15, 1947, igniting hope among millions. However, the nation has grappled with persistent challenges such as corruption, poverty, and illiteracy.

India’s journey into independence was marred almost immediately by the Jeep scam of 1948, a stark indicator of the challenges to come. Since then, a seemingly endless stream of scandals has plagued successive governments. The pervasive nature of corruption is exemplified by former Prime Minister Rajiv Gandhi’s infamous assertion that only 15 paise of every rupee allocated for public welfare actually reaches its intended beneficiaries, with the remaining 85 paise siphoned off by politicians, bureaucrats, and their associates.

The frequency and scale of corruption escalated over time. Multi-million and even billion-dollar scams became commonplace. International aid and loans intended for poverty alleviation were diverted into the coffers of politicians and bureaucrats. The plunder extended beyond foreign funds to the nation’s natural resources. The coal and Commonwealth Games scams are infamous examples of this rampant corruption.

Corruption had become so normalized that it was expected at every level of society. Citizens anticipated bribes from government employees and police officers. The opulent lifestyles of politicians, often funded through illicit means, were accepted without question. This systemic corruption created a toxic environment where dishonesty permeated every sector, from government offices to private businesses.

Finally the 2014 elections came and Mr. Narendra Modi was introduced as the Prime Ministerial candidate of the BJP party. Mr. Narendra Modi had a reputation of being business friendly, honest but also anti-minority. The ruling party Congress made Mr. Modi’s reputation of being anti-minority a huge issue. The elections were polarized in the name of minority appeasement. Mr. Modi was labeled as an anti-minority because of the Gurjat riots which took place in the year 2002. Gujrat riots started when a group of Hindu pilgrims train was attacked by Muslims in Gujrat.

“A train carrying Hindu pilgrims was set on fire by a Muslim mob, resulting in the deaths of several people. This incident triggered widespread communal violence across the state. Mr. Modi, the then Chief Minister, was criticized for his handling of the riots. However, his reputation as a business-friendly and honest leader, coupled with his successful track record of bringing development to Gujarat, significantly contributed to his election as Prime Minister of India in 2014.”

When Mr. Modi became Prime Minister, people had high expectations. They anticipated rapid improvements in governance, including zero corruption, enhanced internal and external security, transparency, better infrastructure, increased financial prosperity, and overall progress. It is now 2024, and Mr. Modi has completed two terms as Prime Minister. We have witnessed significant changes on the ground level.

We have witnessed some of his popular schemes, such as housing for all, direct benefit transfers, digital transactions, universal tap water supply, affordable internet, an excellent new road network, improved electricity, and sanitation, bring about changes in people’s lives. Additionally, there have been no new scams reported in the government thus far. While it’s possible that scams exist but remain undisclosed due to the current administration, it’s also noteworthy how many previously corrupt leaders from other parties have adopted a clean image upon joining the BJP.

Anyways, Mr. Modi seems to be a lot better leader than any other option but one place where his karizma does not seem to work is the corruption on ground level. The corruption which people face in their daily lives, such as corruption in government offices and policing. I know that Policing is a matter of the state government and Mr. Modi can not do anything about it. I also know that most of the work which literally matters in people’s lives is done by the state governments. There are many central government run offices and institutions in different states but they are also somehow highly affected by the governance of the state.

I cannot think of a single government office where anyone can get any work done without offering a bribe. If I want a new electricity connection, I will have to offer a bribe. To build a house, I will have to bribe someone in the municipality and city development authority. Starting a business requires bribing the concerned authorities. Even getting a loan or registering a police complaint involves paying bribes.

The government of India has a program called housing for all. The way this scheme work is that if someone who has a piece of land but not a house then the government gives some money. The money is sent directly into the beneficiary’s account in four different installments. The beneficiary provides a plan, gets it approved by some government officer and then the amount is sent directly to the beneficiary’s account. But since there is an officer involved in between, he charges almost 20% bribe in advance, I have heard that at some places its even 40%.

So, I mean to say that corruption is prevalent in almost every aspect of life, and it’s often incredibly frustrating. I have countless personal experiences with corruption and would like to share a recent incident involving the birth of a child in my family and the death of my uncle. This case highlights corruption within the central government, state government, and private sector—a reflection of the broader corruption of humanity.

Let’s focus on the birth of my sister-in-law’s child. Most people who can afford private healthcare avoid government hospitals due to inefficiency caused by corruption. This isn’t about the quality of doctors but the poor service resulting from corruption. Patients are often neglected, with doctors and nurses absent or unwilling to see them. Senior residents handle most cases, and essential services like medicines are charged despite being supposedly free. The infrastructure is excellent on paper but poorly maintained.

My sister-in-law’s husband was unemployed when she was pregnant, so they opted for government hospital services, which were supposed to be free (including medicines, delivery, vaccines, supplements, and doctor fees). The day she went into labor, she was rushed to the hospital and, after much chaos, was admitted. They informed the family that she would deliver that night and that she was hemoglobin-deficient, requiring three units of blood. The family managed to find donors without difficulty.

The hospital planned to perform a caesarean section. When I visited her, I was appalled by the conditions. The mattresses were dirty, the bedsheets used, and garbage littered the floor. A single nurse was responsible for perhaps fifty patients, with many nursing duties delegated to family members. It was horrifying. To add insult to injury, the hospital demanded a bribe of Rs. 7000 for the delivery, payable in advance.

The surgery was scheduled for around 9 PM, but they demanded the money around 5 PM. Seven thousand rupees might not seem like a large sum to a middle-class Indian family, but it was a significant amount for someone unemployed. The father didn’t have the money and was struggling to arrange funds for his wife’s post-surgery care. This sudden, unexpected expense was overwhelming.

He questioned the hospital staff about the fee, given that the surgery was supposed to be free. The response was that while the surgery itself was free, a payment was still required. This money, they claimed, went directly to the doctor, and failure to pay could jeopardize the mother and child during the operation. Imagine the shock and fear this caused. The hospital employee explicitly threatened the well-being of the mother and child if the bribe wasn’t paid.

Despite lacking the funds, the father felt compelled to comply. He borrowed the money and gave it to the hospital employee. Only after the bribe was paid was his wife taken into the operating room. This harrowing ordeal illustrates the deep-rooted corruption a person faces even before birth in India.

Now let’s discuss the other incident involving my uncle’s death. One of my uncles died in a motorcycle accident a few months ago while returning home. He was alone when the accident occurred and was brought to the hospital by strangers. My uncle was still alive at the accident scene and gave his mobile phone to passersby, asking them to inform his family. They called some relatives using his phone and then took him to BHU, Varanasi’s largest hospital.

BHU is a centrally funded university with the region’s largest hospital. It’s the backbone of healthcare in eastern Uttar Pradesh and serves patients from neighboring states like Bihar and Madhya Pradesh. My uncle was brought to BHU’s trauma center already deceased. Upon arriving at the hospital, I found his body unattended. The doctor informed me that my uncle had been brought in dead and hadn’t been officially admitted. They asked if we wanted to take the body or if they should perform an autopsy. Indian law mandates an autopsy in cases of unnatural death. As an autopsy is required for insurance claims, loans, and other financial matters, we requested one.

BHU staff informed us that they no longer performed autopsies on-site. Instead, all autopsies were conducted at another government hospital about 10 kilometers away. They explained that they would first inform the police, who would then handle the paperwork before the body could be transferred. Our request for an autopsy initiated a series of frustrating and corrupt events.

The hospital had stretchers but stored them outside the trauma center. We were asked to fetch one ourselves, a minor inconvenience but a task that should have been handled by hospital staff, especially considering the emotional state of grieving families. After obtaining a stretcher, we waited for hospital personnel to assist in moving the body to the mortuary.

An hour later, someone arrived, but initially refused to touch the body, demanding that we move it to the stretcher. My brother and I were unable to do so alone and needed additional help. Despite our pleas, we were forced to move the body ourselves. We then had to transport the stretcher with the body approximately 300 meters to the mortuary.

Moving a stretcher with a body on it requires proper handling. I had no experience with stretchers but somehow managed to navigate it. We finally reached the mortuary, which could accommodate about four to six bodies. There was no hospital staff to open the mortuary or store the body. The accompanying hospital employee was only there for paperwork. He called someone, and after about thirty minutes, a severely intoxicated man arrived, reeking of alcohol.

He wasn’t a regular BHU employee but a temporary hire. I believe there should be a dedicated person for this job, but someone was likely avoiding their duties. This is a common issue in India, where government employees often delegate their work to others while still receiving a salary. I suspect this was a similar case. In fact, I know someone personally working at a village health center who never shows up for work. He’s anxious now because the government is implementing a biometric attendance system.

Anyway, this intoxicated man demanded payment for his services. He asked for 1000 rupees to move the body into the mortuary and later retrieve it. The real challenge began when we tried to move the body with this drunk man. Just the two of us, plus him, had to handle a body soaked in blood from the accident. The bleeding hadn’t stopped. With great difficulty, my brother and I managed to move the body into the mortuary with his help. Then the hospital staff told us to wait for the police.

He said they had already informed the police but suggested we contact them directly to speed up the process. He also mentioned that the autopsy hospital had a 4 PM cutoff and if we were late, the autopsy would be postponed until the next day. He warned that if we arrived after the cutoff, there might not be mortuary space available for the night. Now we had to decide whether to proceed with the autopsy that day or wait until the following day.

It was already 1 PM, leaving us just three hours to complete the police paperwork and reach the other hospital. The police finally arrived around 3 PM. They asked the intoxicated man to remove the body from the mortuary. He again requested our help, which we reluctantly provided. As we placed the body on the floor, blood gushed out everywhere. This is clearly a job for trained professionals, not family members. Despite the mess, we managed to position the body on the bare floor while the police questioned the intoxicated man about the body’s condition.

I was astonished to see the police officers didn’t even examine the body. They sat about 20 meters away, conversing with the intoxicated man. The officer recorded the man’s description of the body: fair complexion, a jaw injury, a scratch above the eyebrow, and the clothing color. Meanwhile, we were tasked with arranging an ambulance to transport the body to the other hospital. It’s unbelievable that such a large hospital lacked an ambulance, or perhaps they were unwilling to provide one. We were directed to contact private ambulance services.

We found a vehicle with “ambulance” written on it, but it wasn’t a real ambulance. The seating arrangement was the only difference from a regular car. The person helping us find an ambulance warned me that these ambulance drivers often charge extra and that I might need to negotiate. It was heartbreaking to realize that even in death, corruption and bargaining were involved. Overwhelmed, I simply asked him to find an ambulance. The police then demanded a special packing material that was sold outside. Neither the police nor the hospital had any.

We found the required packing material at a nearby store. It was a large plastic bag with the Uttar Pradesh Police logo. With the drunken man’s assistance, we placed the body in the bag and sealed it properly using wax and a hospital logo. We managed to leave BHU around 3:20 PM, giving us only 20 minutes to reach the other hospital. We arrived just in time and handed over the body, waiting outside. To my astonishment, the body was returned to us within 45 minutes. I’ve always questioned how such a complex procedure could be completed so quickly.

It appears they simply opened the body cavity and closed it without performing any actual procedures. They probably copied the information directly from the police report, which was inaccurate as it was dictated by the intoxicated man, not the police themselves. The body was returned to us, and we cremated it that evening. My uncle’s family went to their ancestral village for post-cremation rituals and later returned to Varanasi to obtain the death certificate after two weeks.

Typically, death and birth certificates are issued by the municipality. We contacted the municipality, and they requested a police report. At the police station, we were informed that the report was under process and would take at least a week to complete. They suggested finding the specific officer who created the report. After locating the officer, we were told that police reports are confidential and not shared with families. We could apply for a certified copy once the report was submitted to the police commissioner’s office. As an alternative, the officer offered to provide an unofficial, unsealed copy, which he claimed would suffice for the municipality.

We asked the municipality official for the non-official police report. We returned to the police officer and witnessed him making a phone call to another officer on speakerphone. The other officer agreed to prepare the report if we “took care” of him, a clear request for a bribe. It was unimaginable to be extorted in such a manner while grieving a loss.

By this time, we already knew someone who could help us, but we decided to try another option. We contacted someone at a larger police station’s communication department, who agreed to provide the report. We were told to return the next day to collect it. When we arrived, the officer openly asked for a bribe. He was young, probably around 27 or 28, and demanded whatever we could give him. My cousin offered the only cash he had, 200 rupees, but the officer insisted on more.

After a few minutes of negotiation, he handed us the report, and we left without further conversation. So, he did demand a bribe but ultimately received nothing. We obtained the certificate, but the ordeal was far from over. We later discovered a misspelling of my uncle’s name on the report, rendering it useless. The next day, we visited the municipality office, where we were informed that due to the involvement of the police and BHU, the death certificate would be issued by BHU, not the municipality.

We contacted the BHU office the next day to explain the name misspelling issue. The officer stated that it didn’t matter and they would use the name from the ID card, not the police report. This was a relief. We filled out the required form and submitted it. Inquiring about the processing time, we received a surprising response. The officer mentioned it could take a week if the government website was functioning correctly, but it might take one to two months if the website was down. When we asked about the website’s reliability, he explained that it often experienced technical difficulties, hindering certificate generation.

I was astonished that while India boasts of widespread smartphone usage, 5G internet, and globally renowned tech professionals, our government websites are dysfunctional. Eventually, we navigated the university bureaucracy and obtained the certificate within three days.

Comparing these two cases, we find starkly contrasting situations: one involving a yet-to-be-born child and the other a deceased individual. Multiple institutions were implicated: a state-run hospital for the caesarean section, a central government hospital like BHU, another state-run hospital for the autopsy, state police, and a private ambulance service. The common thread throughout this ordeal was corruption at every step. One life was adversely affected before birth, while the other continued to grapple with its consequences even in death.

Everyone in India experiences corruption at some level, but people seem desensitized to it. One of India’s most significant problems is poverty, primarily caused by corruption and overpopulation. I believe poverty could be eradicated within a few decades if corruption were eliminated. I once met an American working for the World Bank in Bangladesh who had just completed a ten-year project there. He was visiting India on vacation before returning home.

He told me that the World Bank provided substantial funds for road construction in Bangladesh, but corruption prevented the completion of even a single project. He explained that projects were intentionally delayed as a pretext to request more money. Consequently, projects were perpetually delayed, and no one benefited. He admitted to not completing a single project in his ten-year career. India also faced similar issues under previous governments, but there seems to be improvement under Prime Minister Modi. While hopeful about Modi’s leadership, I recognize the challenge of tackling corruption. His reputation makes him a target for opposition, even to his positive initiatives. It’s essential for everyone to prioritize the fight against corruption if India and its people are to realize their full potential.

My Liver Transplant Journey Part 2: Stay with in-laws & Their Behavior: BHU Hospitalization

Continuing from the post number 1 …………….

My wife was visiting her parents during that time. One day, I called her and mentioned that I’d like to join her for a few days. I’m still puzzled by that decision, as I’m not someone who typically enjoys extended stays at my in-laws’ place. My wife was equally surprised, as it was likely the first time in our marriage that I’d expressed such a desire. I did go, and it was there that I began experiencing daily evening fevers accompanied by chills.

Sigmoidoscopy Report from February 2020

Whenever I felt cold, I would take Zerodol-P for temporary relief. I was also experiencing severe, persistent leg pain that was difficult to describe. This continued for three or four days, prompting me to get a blood test. I opted for a CBC and LFT. The results showed slightly elevated TLC counts, elevated bilirubin (around 8), elevated AST and ALT levels, and low albumin levels. While I initially believed it wasn’t serious, my family insisted on seeing a doctor. I eventually agreed and consulted a doctor at BHU.

Endoscopy Report from Feb 2020

The gastroenterology department head at BHU, Dr. V.K. Dixit, ordered additional tests: CBC, LFT, KFT, PT-INR, Endoscopy, and Colonoscopy. The results were concerning. In addition to abnormal LFT, my PT-INR was alarmingly elevated, far exceeding the safe range. My PT-INR was 3, while it should have been below 1. A resident doctor initially reviewed my reports and advised me to seek treatment at a larger hospital due to their severity.

Color Doppler Report from March 2020

His first question was whether I had experienced bleeding through my stool, nose, or cough. I replied negatively. He then explained that my PT-INR levels were so high that I risked vomiting blood or falling into a coma at any time. He recommended seeking treatment at a specialized liver hospital in Delhi. However, I insisted on seeing a senior doctor first. The senior doctor concurred with the assessment of my PT-INR levels and asked the same questions about bleeding.

BHU Prescription Page 1

I was unfamiliar with PT-INR levels and unaware of the dangers posed by elevated levels. The doctor instructed me to be admitted to the ward immediately. I complied, but after only two days, the doctor asked my family to take me home. He explained that there was little left to do, and they should either transfer me to a specialized hospital in Delhi or take me home. The doctor emphasized that the only potential option for survival was an immediate liver transplant.

BHU Prescription Page 2

My family requested that he keep me in the hospital for a few days, but he refused. He explained that it wouldn’t be beneficial to stay at BHU, as they lacked the necessary facilities for my condition. After much persuasion, he agreed to admit me. Fortunately, my body responded to the medication, and I began to feel better. I stayed in the hospital for a week and was eventually discharged. The doctor prescribed some medications and scheduled a follow-up appointment for two weeks later.

I was discharged from the hospital on March 21st, just a day before the lockdown was imposed. I’d like to reflect on my time at my in-laws’ place, as it taught me a valuable life lesson. Their family is a joint family, consisting of my in-laws and my wife’s uncle’s family. This includes my mother-in-law, my wife’s uncle, aunt, their son, and my wife’s grandmother. My father-in-law passed away in 2017, and since then, my mother-in-law has been living with my uncle’s family.

When I moved in with them, my aunt seemed somewhat upset. The next day, she told my wife that if we were staying for a few days, we should bring all our groceries and give them to her. My wife complied, emptying our kitchen and giving everything to her aunt. My aunt would also ask my wife to buy milk, vegetables, and other groceries in exchange for our stay. Essentially, I was paying for our stay, which is unheard of in Indian culture.

I later learned that my wife’s uncle had lent her money at a high interest rate while I was fighting for my life at BHU. While high-interest loans are common in the market, you wouldn’t expect such behavior from your own uncle in an emergency. He lent Rs. 60,000 at a 10% monthly interest rate, even deducting one month’s interest upfront. My elder brother and my wife contributed to my hospital bill.

We humans have categorized our personal and social lives in specific ways. We anticipate certain behaviors from certain relationships. My relationship with my wife’s family is deeply sacred, but such behavior raises questions about the fundamental nature of human connection and relationships. While such incidents are rare—I’ve never heard of anything similar elsewhere—I experienced it firsthand. I acknowledge his assistance, but I no longer consider it help because he charged money for it…

To be continued in Part 3……

Inhuman behavior of doctors at BHU

The BHU hospital is a beacon of hope for millions in Purvanchal, Bihar, Madhya Pradesh, Chhattisgarh, Nepal, and other parts of India. Patients flock from these regions seeking medical care, as it’s the largest hospital in the area. Unfortunately, the hospital’s management, staff, and doctors are plagued by corruption and cruelty, lacking basic humanity. Even locals believe BHU offers top-tier medical expertise, but without personal connections, navigating the hospital is an arduous challenge.

Navigating the BHU hospital is an arduous ordeal from registration to treatment, medication, and even claiming rightful subsidies. The process begins with the frustrating task of obtaining a registration number. As there’s no online option, patients must endure long queues, often waiting hours. The next hurdle is consulting a doctor, which involves another lengthy queue and encounters with a corrupt system. Patients with connections can bypass these queues, while others wait patiently.

BHU’s OPD typically operates with one senior doctor and five to six junior doctors. Patients are initially seen by junior doctors, who may consult with the senior doctor if needed. However, preferential treatment is given to those with connections, undermining the system. Diagnostic tests like blood tests, CT scans, and MRIs are often recommended, but accessing these services is another challenge. Despite affordable costs, patients face excessively long wait times, making it nearly impossible to obtain timely tests in emergencies. To avoid delays, many patients opt for private facilities, often at inflated prices, which may also benefit the referring doctor through commissions.

Hospital admission is another major hurdle. While beds are technically available, securing one often requires connections within BHU. Numerous acquaintances have shared experiences of initial denial, followed by immediate admission upon intervention by influential individuals. Patients without such connections are frequently left to endure inhumane conditions, including treatment on the hospital floor due to a scarcity of beds and stretchers. Once admitted, patients are subjected to a complex system of commissions, with BHU staff playing a central role.

Patients and their attendants often face pressure from external pharmacies to purchase medications. These pharmacies offer discounts as an incentive, but these deals are typically less advantageous than the subsidized prices at the hospital pharmacy. To exacerbate this issue, some doctors recommend specific external pharmacies, often due to undisclosed commissions. A recent case involving a neighbor diagnosed with breast cancer exemplifies this problem.

A biopsy confirmed the patient’s cancer had progressed to stage three, necessitating urgent chemotherapy due to the tumor’s size. Disturbingly, the doctor mandated purchasing medication from a specific off-campus pharmacy. This was particularly egregious given the hospital’s AMRIT store, a government initiative offering cancer and heart medications at significantly reduced prices. The scale of the issue is alarming. India records 700,000 new cancer cases annually, with 2.8 million living with the disease and half a million succumbing each year. Breast cancer specifically affects 145,000 Indian women yearly, according to the World Health Organization.

The exorbitant costs of cancer treatment often force over half of patients to discontinue therapy after just two or three cycles. To address this crisis, the government launched the Affordable Medicines and Reliable Implants for Treatment (AMRIT) program. When the patient inquired about the medication’s cost at the doctor-recommended pharmacy, they were quoted an exorbitant Rs. 17-18,000. Given my experience paying around Rs. 5,000 for a similar treatment at Mumbai’s Tata Memorial Hospital, I advised the patient to check the price at the hospital’s AMRIT store.

The patient was astounded to find the same medication priced at a mere Rs. 4000 at the AMRIT store. Coming from a destitute background, they were already seeking government financial aid, but the process was time-consuming, and immediate treatment was crucial. With limited savings, they purchased the medicines from AMRIT but returned to the doctor to verify the prescription, unable to fathom the price discrepancy. The doctor initially approved the medications but unexpectedly requested the purchase receipt.

Upon presenting the AMRIT store receipt, the doctor erupted in anger, berating the patient for disregarding her instructions. The patient explained the significant cost difference and their dire financial situation, emphasizing the impossibility of affording the exorbitant price quoted earlier. Despite the clear financial benefits of the AMRIT purchase, the doctor remained inflexible. In a callous disregard for the patient’s well-being, she discarded the medications and dismissed the patient, effectively ending their treatment.

Overwhelmed by despair, the patient pleaded with the doctor to begin treatment, but their pleas fell on deaf ears. This was not an isolated incident; numerous patients faced identical ordeals. With treatment options dwindling and time running out, we were forced to consider alternatives. The Railway Hospital in Varanasi, although not our first choice due to BHU’s perceived superior facilities, emerged as the only viable option. Upon explaining the situation, the Railway Hospital’s medical staff extended their sympathy and agreed to admit the patient. Their willingness to accept the AMRIT-purchased medication was a beacon of hope in this distressing situation. Even the hospital staff expressed shock at the events.

The patient’s treatment commenced at the Railway Hospital, with chemotherapy medications procured from BHU’s AMRIT store. However, a temporary setback occurred when the Railway Hospital was closed for renovations to align with Tata Memorial Center’s standards. While this disruption to treatment was disheartening, the prospect of improved facilities and care at the revamped hospital offered a glimmer of hope.

Fortunately, all Railway Hospital cases were transferred back to BHU on a government order, resolving the immediate crisis. Subsequent chemotherapy treatments were administered at BHU, where the AMRIT medications were accepted. Reflecting on the ordeal, the doctor’s cruelty in denying treatment due to financial constraints is unconscionable. The underlying motive of profit through medication commissions is a stark indictment of the medical profession. While locals like me have options, the plight of those from distant regions is unimaginable. This systemic failure to prioritize patient care is a grave concern.

A particularly egregious case involved a cardiac patient from Aurangabad, Bihar, admitted to BHU in May 2017. Hailing from a poverty-stricken background, the family had secured government aid of Rs. 1,75,000 for the treatment. Typically, these funds are directly transferred to the hospital or reimbursed against bills from authorized pharmacies. Despite presenting the government approval, the patient was denied treatment. The doctor fabricated excuses and demanded a Rs. 2,50,000 upfront payment to a specific off-campus location.

Desperate to save their loved one, the family mortgaged their agricultural land to raise the demanded Rs. 2,50,000. The surgery itself, performed at BHU, likely incurred minimal costs – I recall paying only Rs. 500 for a heart valve surgery for a cousin about a decade ago. The exorbitant expenses were primarily attributed to medication costs. Post-surgery, the family sought reimbursement by requesting medication receipts from the shop. To their dismay, they received receipts totaling only Rs. 1,80,000, revealing a discrepancy of Rs. 70,000. Outraged by this deception, the family filed a formal complaint with the hospital’s Medical Superintendent.

The Medical Superintendent intervened, demanding the shop owner return the excess Rs. 70,000. Despite an initial agreement, the shop owner reneged on the promise. Adding to the family’s distress, government reimbursement was contingent upon receipts from AMRIT stores – a condition impossible to fulfill due to the doctor’s mandate. This blatant exploitation, driven by the lure of commissions, underscores a deep-rooted malaise within the healthcare system. The suffering inflicted on vulnerable patients is unimaginable.

The family’s financial ruin due to the doctor’s greed is a tragic consequence. This is not an isolated incident but a systemic problem, prevalent in many healthcare institutions across India. While not every doctor is corrupt, the frequency of these cases is alarming. Increased transparency and online systems offer potential solutions, but the journey towards a just healthcare system is likely to be long.

Prime Minister Modi’s efforts to combat corruption are commendable. Initiatives like the AMRIT scheme demonstrate a commitment to improving healthcare accessibility. It is imperative to sustain this momentum and implement stricter measures to hold corrupt medical professionals accountable.

New Paper article

Kidney Transplant at Ganga Ram Hospital

ये लेख मेरे छोटे भाई सामान कुंदन के किडनी ट्रांसप्लांट से सम्बंधित मेरे व्यक्तिगत अनुभव से प्रेरित है. कुंदन कुशीनगर का रहने वाला है लेकिन बनारस में रहा कर बीएचयू में पढाई कर रहा था. उसको सरदर्द की पुरानी बिमारी थी जो की एक दिन उभड़ गयी और चुकी वो बीएचयू का विद्यार्थी था और वहीँ हॉस्टल में रहता था इसलिए वो बीएचयू में ही बीएचयू के विद्यार्थियों के लिए चलने वाले डिस्पेंसरी गया दवा लेने के लिए. डॉक्टर ने उसका साधारण जांच किया जिसमे ब्लड प्रेशर बहुत गड़बड़ था. तो उसको उसको और भी कई जांच लिख दिया, जब रिजल्ट आया तो उसमे एक बहुत खतरनाक चीज सामने आयी और वो था क्रिएटिनिन लेवल जो की ५.१ पहुंच चुका था जबकि इसे होना चाहिए 0.5 से 1-1.2 के बीच जिससे ये तो अंदाज़ लग गया की किडनी से सम्बंधित कोई बहुत गंभीर बीमारी है.

उसका किडनी से सम्बंधित दूसरा टेस्ट किया गया तो मालूम चला की एक किडनी पूरी तरह ख़राब हो चुकी थी और दूसरी भी ८०% तक ख़राब हो चुकी थी. इसी बीच अभी दवा इलाज शुरू भी नहीं हुआ था की कुंदन के एक आँख की रेटिना सरक गयी और उसको एक आँख से दिखना बंद हो गया. एक २२ साल के लड़के के लिए ये जमीन फट जाने जैसी खबर थी. तुरंत उसके घर वालो को बुलाया गया. बीएचयू में इलाज भी शुरू हुआ लेकिन उसकी हालत दिन प्रति दिन बिगड़ती जा रही थी. कुछ दिनों तक तो बीएचयू ने खर्चा उठाया लेकिन उसके बाद वो भी हाँथ पीछे खींच लिए. दूसरी सबसे बड़ी परेशानी थी की बीएचयू में किडनी ट्रांसप्लांट की सुविधा नहीं थी, उसके पास केवल एक रास्ता था की वो या तो दिल्ली जाए या फिर लखनऊ जहाँ उसको बहुत पैसे की जरूरत पड़ती लेकिन परिवार के पास कुछ नहीं था.

असल में उन लोगों के पास गरीबी रेखा से नीचे वाला राशन कार्ड था. घर पर थोड़ा बहुत जमीन था खेती वाला और पिता जी भी बेरोजगार। अब सबसे बड़ी समस्या थी की पैसा कहाँ से आएगा। बीएचयू ने एक मदद किया की वो बोले की जबतक पैसे का व्यवस्था नहीं हो जाता तबतक मरीज को हम अपने यहाँ रखेंगे फ्री में लेकिन पैसे का व्यवस्था तो करना ही पड़ेगा। दिल्ली में गंगा राम हॉस्पिटल में पता करने पर मालूम चला की केवल ट्रांसप्लांट का ही खर्चा लगभग ७.५ लाख रुपया होगा। बीएचयू ने ये भी वादा किया वो लोग भी थोड़ा पैसा देंगे लेकिन पूरा नहीं कर पाएंगे। एक ही रास्ता बचा था की सरकारी मदद ली जाए लेकिन उसमे समय लगता है और समय की बहुत बड़ाई दिक़्क़त थी क्योकि कुंदन की तबियत दिन प्रति दिन बिगड़ती जा रही थी. उसके क्लास के पढ़ने वाले बच्चे बीएचयू में विरोध प्रदर्शन कर रहे थे, उनकी ये मांग थी की पूरा खर्चा बीएचयू उठाये लेकिन बीएचयू ने सीधे मना कर दिया था. एक समय तो ऐसा भी आ गया था जब कुंदन अपने आपको हॉस्पिटल के कमरे में बंद कर लिया था, बोला या तो मेरा इलाज करो या तो मुझे जान से मार दो.

उसको डायलिसिस पर रखा गया था. लेकिन लगभग लगभग सभी नसें बेकार हो चुकी थी. पहले हाँथ से  करते थे, फिर पैर से करना शुरू किये और फिर अंततः गर्दन के पास से करते थे. जब गर्दन के पास से करना शुरू  किये तो नस में पाइप लगवाने के लिए कुंदन को लखनऊ जाना पड़ता था. सोच कर भी शरीर कांप जाता है की कैसे उतनी बिमारी में वो बनारस से लखनऊ केवल एक पाइप डलवाने के लिए जाता था. मुझे अभी भी याद है की एक बार हम उसको अपने घर के पास देखे चाय की दूकान के बाहर खड़ा था, जो की मेरे लिए एक झटका सा था क्योकि उस समय उसकी तबियत इतनी ज्यादा खराब थी की सभी लोग लगभग मान चुके थे की अब कुंदन बचेगा नहीं। और उसको हॉस्पिटल से  बाहर देखना मेरे लिए बहुत बड़े अचरज का विषय था.

खैर, हम तुरंत उसके पास गए लेकिन उसकी हालत देखकर अपनी आँखों पर विश्वास नहीं हो रहा था. पूरा शरीर जबरदस्त रूप से सूज गया था और पीला पड चुका था. वो बात कर रहा था हमसे लेकिन क्या बोल रहा था कुछ समझ नहीं आ रहा था, लेकिन सुनाई उसको सब कुछ साफ़ साफ पड रहा था. तभी देखे कुंदन के पीछे उसके पिता जी भी खड़े थे. हम उनसे पूछे की कुंदन हॉस्पिटल से बाहर कैसे निकला तो वो बताये की वो खुद अपने से सारा पाइप निकाल कर हॉस्पिटल से बाहर आ गया था. मुझे अच्छी तरह से मालूम है की वो इतना ज्यादा कष्ट झेल चूका था की किसी तरह से बस उस नरक से बाहर आना चाहता था. समय बीतता जा रहा था लेकिन पैसे की व्यवस्था नहीं  हो पा रही थी. किसी तरह से उसके घर वाले, उसके मित्र और बाकी जो मेरे परिवार से हो सकता था हम लोग कर रहे थे. उसके मित्र लोग बीएचयू के अंदर और शहर में अलग अलग जगह भिक्षाटन कर के तकरीबन १.५ लाख रुपया जुटाए।

लेकिन उतने पैसे से कुछ नहीं होने वाला था और कुंदन की हालत भी दिन प्रति दिन बिगड़ती जा रही थी. अब हमलगों के पास केवल एक ही विकल्प था की जितना जल्दी से जल्दी हो सके सरकारी मदद की व्यवस्था की जाए. सरकारी मदद के लिए दो विकल्प थे- सांसद निधि और विधायक निधि। सांसद निधि से मदद मिलने में समय ज्यादा लगता है क्यंकि सबकुछ पहले दिल्ली फिर लखनऊ और फिर जिले स्तर पर पहुँचता है इसलिए लेट हो जाता है जबकि विधायक निधि सीधे लखनऊ से पास हो जाता है. इस बारे में ज्यादा जानकारी के लिए मैंने अपने बड़े भाई समान नन्दलाल मास्टर जी को फ़ोन किया जो की एक समाजसेवक है और लोक समिति नामक संस्था चलाते हैं. उन्होंने मुझे तुरंत संदीप पांडेय जी से मिलने के लिए बोला जो की उस समय बीएचयू में आईटी विभाग में पढ़ा रहे थे.

संदीप भईया से मेरा भी पहले कई बार मिलना हुआ था इसलिए कोई दिक़्क़त नहीं हुई. उन्होंने भी यही सलाह दी की राज्य सरकार से मदद लिया जाए. असल में उन्होंने ही मदद के लिए प्रार्थना पत्र अपने हांथो से लिखा और सारा कागज एकत्रित कर के ये बोला की अब जिलाधिकारी कार्यालय में आवेदन कर सकते हैं. आवेदन हो गया और अंततः लखनऊ से पैसा भी पास हो गया और वो पैसा सीधा गंगा राम हॉस्पिटल के खाते में कुंदन के इलाज के नाम पर ट्रांसफर कर दिया गया था. लेकिन अब दूसरी दिक़्क़त ये सामने आयी की वहाँ पर तारीख नहीं मिल रही थी. और इसी बीच लेट होने की वजह से वो पैसा वापस से राज्य सरकार के खाते में ट्रांसफर हो गया. जिसको दोबारा से बहुत चक्कर लगाने के बाद फिर से राज्य सरकार से गंगा राम में ट्रांसफर करवाया गया. अंततः ट्रांसप्लांट की डेट आ गयी और कुंदन को बीएचयू से गंगा राम हॉस्पिटल पहुंचा दिया गया.

इस बीच कुंदन बीएचयू में ९ महीने तक अपने जीवन के लिए संघर्ष करता रहा. उसके कष्ट को बयान कर पाना मुश्किल है, केवल वो लड़का ही अपना कष्ट समझ सकता है. खैर, बीएचयू में ९ महीने रहने का उसका बिल १३ लाख रुपया आया जिसमे दवा, डायलिसीस और वार्ड के कमरे का किराया सब कुछ जुड़ा हुआ था. बीएचयू ने उसके सारे खर्चे को माफ़ कर दिया और उसके अलावा १,६०,००० रुपया भी किया। लेकिन इस मदद से भी उसका इलाज पूरा नहीं हो पता क्योकि सरकार से केवल ४,५०,००० रूपये की मदद मिली थी जबकि गंगा राम में ट्रांसप्लांट का ही खर्च केवल ७,५०,००० रुपया था. इस बीच हम भी अपने दोस्तों से कुछ मदद लिए और अलोक, सना भाई, योगेश और कुछ एक विदेशी मित्रों ने भी कुंदन के लिए कुछ मदद किया जिससे उसका ऊपरी खर्च कुछ हद तक सपोर्ट हो सके.

गंगा राम हॉस्पिटल में ही कुंदन के पिता जी की मुलाक़ात किसी एनजीओ के एजेंट से हुई जो इनको बोला की वो कुंदन का बाकी खर्चा किसी संस्था से दिला देगा और ट्रांसप्लांट के बाद दवा में होने वाले खर्च में भी मदद करेगा जो की बहुत बड़े सुकून की खबर थी. इसके बदले वो कुंदन के पिता जी से कुंदन के इलाज सम्बंधित सारे कागज लिया और कुछ दिन बाद बाद इन लोगों को कुछ पैसा भी ला कर दिया। पूरा उसने ७०,००० रुपया दिया था लेकिन बाद में मालूम चला की वो एक ऐसे गैंग का एजेंट था जो कुंदन जैसे निर्धन परिवार वालों की मजबूरी का फायदा उठा कर अलग अलग जगहों से पैसा लेता है और उसका थोड़ा हिस्सा मरीज को देगा और बाकी अपने खुद खा जाता है. कुछ हफ़्तों बाद वो कुंदन के पिता जी पर दबाव बनाने लगा दिए हुए ७०,००० वापिस करने के लिए लेकिन इन लोगों के वापस करने के लिए कुछ था ही नहीं तो देते कहाँ से.

खैर, अंततः कुंदन का किडनी ट्रांसप्लांट हुआ, उसके पिता जी की एक किडनी लेकर। कुंदन को ३ महीने हॉस्पिटल में रखा गया था जिस बीच उसकी हर तीसरे दिन डायलिसिस की जाती थी. लेकिन इस बीच वो शुगर का मरीज हो गया और एक कान से सुनाई देना बंद कर दिया। डॉक्टर ने बोला की ये ट्रांसप्लांट का साइड एफेक्ट है जो की पूरी तरह ख़त्म तो नहीं होगा लेकिन धीरे धीरे कम हो जायेगा। अंततः कुंदन के डिस्चार्ज होने का समय आ गया लेकिन फिर वही दिक़्क़त की पैसा नहीं था हॉस्पिटल का बिल चुकाने के लिए. लेकिन गंगा राम हॉस्पिटल ने मानवता का परिचय देते हुए कुंदन के डायलिसिस का बिल माफ़ कर दिया और किसी तरह कुंदन हॉस्पिटल से डिस्चार्ज हो कर बनारस वापस आया.

डिस्चार्ज होने के बाद कुंदन को शुरू में हर महीने में एक बार दिल्ली जाना पड़ता था अपने डॉक्टर से मिलने के लिए जो की बाद में ३ महीने में एक बार कर दिया गया है. आज कुंदन स्वस्थ है लेकिन उसको बहुत सावधानी बरतनी पड़ती है जैसे की शारीरिक श्रम का काम नहीं करना चाहिए, धुल, धुँआ, प्रदूषण से बचना है. साफ़ सफाई की विशेष ख्याल रखना है ताकि किसी तरह के कोई भी इन्फेक्शन पनपने की संभावना न हो, शुगर की वजह से खान-पान का विशेष ख्याल रखना है और हाँ, दवा जिंदगी भर चलेगी। शुरू में तो लगभग ३५-४० गोली रोज खानी पड़ती थी जो की समय के हिसाब से धीरे धीर काम होंगी लेकिन कुछ दवाएं जिंदगी भर खाना पड़ेगा। और ये दवाएं सस्ती भी नहीं है, इनका खर्च लगभग १२,००० रुपया महीना पड़ता है. जैसे ईश्वर इतना कठिन समय में मदद किये वैसे ही दवा की भी व्यवस्था हो जाएगी यही प्रार्थना है. ॐ शांति।

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फिर गंगा राम में इलाज चला – अगस्त २०१६ तक    

Cancer treatment in India

Healthcare services are in terrible condition in India and especially at government hospitals. I know that the situation is not same everywhere but its same more or less everywhere in this country. Government hospitals have either no facilities or they are super corrupt and private hospitals are so expensive that a regular person can not afford them. I know several people who have paid for vaccines or medicines at government hospitals which is supposed to be free. If I just have to talk about hospitals in Varanasi, which is the biggest center for health care services in entire Purvanchal (Eastern Uttar Pradesh which includes 17 districts), very big portion of Bihar state and Madhya Pradesh is full of patients all the time.

There are several government and private hospitals in Varanasi with Sir Sundar Lal Hospital at Banaras Hindu University or BHU being the biggest one. And even at this hospital seeing serious patients sleeping on the floor under open sky, doctors being not available or treatment being evil is never ever a big deal. I have heard of so many complaints where people say their patients just died because of bad services at BHU. In fact I have also personally experienced similar kind of behavior when I was there with a patient of four years whose head was broken, he was bleeding so hard and there was no doctor in the emergency ward. And when treatment started they did not have stitches. Anyways, it is still the biggest hospital of eastern UP and very big hope for a lot of people.

My most recent encounter with this hospital was when my mother noticed a small lump in her breast. We contacted a few doctors at some private hospitals or at doctor’s personal clinic and different ones had different opinion. But most of them said that it might be beginning stage of breast cancer and they will have to remove the whole breast which will be followed by radiation therapy and chemo might also be needed. It was a huge shock for me to hear that someone might be suffering with cancer in my family. Although my mother was absolutely fine with no pain in body or she just did not have any problem at all. I contacted many people and every one suggested me to at least see some doctors at BHU. We contacted oncology department at BHU and they advised FNAC test with mammography x-ray.

The results showed that my mother was suffering from first or second stage of cancer. I had no idea what to do. I was talking with many people, different ones had different opinions but most of them said that I should follow what doctors say at BHU. There is another cancer research hospital run by Indian Railways which is also kind of very famous in the area. A lot of people advised me to see the doctors there but I always had one thing in my mind I won’t start any treatment before getting advise of doctors at Tata Memorial Hospital in Mumbai. Tata Memorial Hospital is most probably the most famous cancer hospital in India. My mind had almost stopped working, I did not know what to do and there was a time when I thought that lets see what the doctors say at Railway hospital and I was preparing to go there.

At the same moment a friend of mine came at home and I told him that I was thinking to see the doctors at Railway Hospital today and then go to Mumbai tomorrow to see the doctors at Tata Memorial. But then he told me that if I am already planning to see the doctors at Tata Memorial why to even waste a day. Why not go there today. I also thought that I should not waste a day and I immediately arranged to travel to Mumbai. I have a few friends (I was expecting help especially from Alok and Yogesh) living in Mumbai and I informed them my mother’s situation and in fact one of them happened to know a doctor personally at TMC. Somehow Mr. Arun Pathak, who is like my elder brother and he is a social worker and a politician in Varanasi, also heard about my situation and immediately arranged my stay in Mumbai at an apartment which he had rented for himself.

When I arrived in Mumbai Yogesh came to pick me up from the airport and dropped me at his place. At the same time Mr. Pathak wanted me to stay at his place which was the biggest luxury possible in a city like Mumbai where hundreds of thousands of people have to sleep on the street but I had two apartments to live there. I spent a few nights at Mr. Pathak’s place. I arrived in Mumbai without my mother and went to TMC but unfortunately the doctor my friend knew was basically dealing with mouth cancer. So we could not see him. Anyways, everything seemed super organized at TMC. I was really amazed by hospital management: everything seemed to be working in order, staffs were very helpful, all the services were computerized, things working very smoothly, it seemed like a hospital which had some sense of hospital management and care for patients.

They looked at the FNAC and mammography report and asked me if I would like to get treatment started at TMC or if I just needed advise. I don’t know why but I said that I need the treatment. There were two categories of registration – general patients and private patients. If I get registered under general patients category then the cost of the treatment was going to be ten times cheaper than if I get registered under private patient category. They mentioned it clearly at that same moment that there won’t be any discrimination or different in treatment whether I get treatment under general patient category or private patient category. The only different would be of the rooms. The rooms of patients under general category are basically shared basis whereas rooms for patients under private category are private. Doctors are same, treatment is same…everything same but some luxury.

They provide bed only when the treatment is happening like during surgery or when chemo is being given for two three hours. Rest of the time the patients have to take care of themselves and I literally saw hundreds of people sleeping on the street outside the hotel who were there go get treatment. Those people would go to the hospital whenever it was needed otherwise street was their home for rest of the times. Sometimes they just live on the street for the entire duration of the treatment which might be even six-seven months or even more. The hospital also gave me an idea about the cost of the treatment immediately which was around 30,000 if I get treatment under general category or around 2,50,000 if I get treatment under private patient. I thought for a while and chose the private category.

My mother had always lived a very relaxed life and I did not want her to be in any kind of stress. Although the cost of the treatment was out of my budget because it was not only about paying for the treatment but I knew that traveling between Mumbai and Varanasi and other expenses were also going to be there. But I still made the decision of getting the treatment under private category. They registered me and sent me to the breast cancer department. There was a very big line but again everything was very well organized so it was not a big deal because at least I knew what was happening. Finally my number came, I was really scared because I did not know what the doctor was going to tell me, and finally entered in a room where I saw a lady doctor waiting for me.

There was something really good that they see only one patient at a time and give proper time otherwise at BHU there is one doctor surrounded by hundreds of patients and you just don’t know whats happening. The doctors saw all the reports and stared asking some questions related with my mother which I did not know. I asked her if she would like to talk with her on phone but she denied. Anyways, I called my mother on phone and tried to answer her questions. The doctor said that she would like to see the patient and without meeting the patient it won’t be possible for her to say anything. She said that in some case doctors might advise or give some suggestions but in case of breast cancer it is necessary to see the patient personally because it is necessary to feel the lump and size of breasts also matter which they need to see. Finally I arranged my mother to come to Mumbai and brought her to the hospital after a couple of days.

The doctors looked at all the reports, examined my mother personally and advised a few blood tests with biopsy. They said that FNAC was not enough and biopsy test was also needed. And in any case they were not going to rely on BHU test reports if we wanted the treatment there. So actually they advised so many different blood tests and during the same time they also advised us to meet with the radiation therapy doctor. We saw the radiation therapy doctor also, she also looked at the lump and said we had two options- either have the full breast removal followed by chemo and radiation therapy or just get the lump removed followed by the chemo radiation. I did not know what to do and I asked her for some time. We contacted some other doctors and all of them suggested us that let the doctor make the decision. During this time we got biopsy and other tests done.

And when we went to see the doctor again they said that a surgery will be performed and since the lump was not so big it is also possible to just remove the lump and not the entire breast. They again gave us an opportunity to get the surgery done at TMC, have medical protocol prepared by the doctors at TMC but have rest of the treatment like chemo followed by other doctors at BHU because it could have been easier for us. When doctor gave us this option my mother was also present there who immediately refused it because she had also seen the condition at BHU. She wanted to get the treatment at TMC only. By this time everything was almost clear but there was only suspicion regarding chemo cycles. The doctors said that final decision will be made after the surgery is done because the number of chemo cycles are decided based on the reports of lymph nodes checkup which are done during and post surgery.

They gave us two options- either we get surgery done at TMC after three months because there were already so many patients in line or we get the surgery done within a week at their another research center located in Kharghar, Navi Mumbai. This other center is also run by the same team but only the location was different. It was around 40 KMs from the old hospital. This new center of TMC was opened in Kharghar in the year 2002 and it was called Advanced Center for Treatment, Research & Education in Cancer. I was still a bit confused and did not want to miss any opportunity of taking advice of as many people as people. One of my friends relatives in Mumbai suggested me to see the doctors at a charitable hospital located in Mumbai called Millat Hospital.

I decided to at least see the doctors at Millat and see what they say. When I met with the doctor there, he also said that surgery will  be done, chemo will  be needed with radiation therapy. But they did not have radiation therapy available at Millat. Finally we made a decision that we will get all the treatments done at TMC only. We contacted the doctors at TMC and agreed on getting the surgery done at Kharghar center. They prepared all the papers and transferred the case at Kharghar center. At first I went to Kharghar with a friend of Yogesh named Ashish who always a very big help. The biggest benefit of having Ashish was that he used to have his own pathology which meant he had some knowledge of medical field and other than that he was also a Marathi which means he could speak local language which is always a very big help.

And in any case it is very hard to find people like Ashish who are always willing to help others. He was not only helping to me but whoever wanted. I noticed him several times just going to unknown people at the hospital and asking them if they needed some help. Anyways, the doctors at Kharghar center said that they could perform the surgery in next four days. They gave me a date and asked me to bring the patient the evening before of surgery and get her admitted at the hospital. Finally I arrived at the hospital the evening before, doctors checked my mother and then the biggest blunder happened. They did not have any private room available, which the patients registered under private category are supposed to get. It was not possible for me to travel back home then return back at the hospital the next day at 7 AM because the traffic in Mumbai was crazy.

They asked me to sleep at the hospital guesthouse which is basically lodging facility patients getting treatment under general category which did not seem to be a big issue and we thought that we will sleep overnight there. After all it was only about a night but once we arrived at the guesthouse room I said to myself that it was not the place where my mother could sleep. The biggest problem was that there were eight beds at a distance of hardly two feet from each other in one room and all of them had patients whose surgery was already performed. Most of them had either mouth or throat cancer and would was visible. I had full sympathy for the patients but I did not want my mother to be scared of surgery or be stressful the night before her surgery.

I think they should keep the pre-surgery patients separated from post surgery patients because the cancer wounds are very scary and it might scare the patients going to get surgery. The other problem, which was the biggest, was that the windows of the room were kept closed intentionally so that already sick patients do not feel cold. There was terrible smell of medicine without any ventilation in the room. I saw at my mother’s face, she did not say even a single word but I knew that she was not comfortable at all. I immediately decided that I was not going to stay there over night. Fortunately I had another friend from Varanasi who was in Mumbai those days and he had a relative living somewhere in Kharghar. I called him and explained the situation at the hospital and finally he arranged for us to sleep overnight at his relative’s place which was happened to be hardly 10 minutes drive from the hospital. It was such a big help.

Anyways, I could not sleep the whole night because I was tense about the surgery the next day. I was just laying down and thinking about the next day and suddenly I noticed the sunlight. I prepared myself and we headed for the hospital. The doctors did some basic tests and asked us to wait outside the surgery room. During this time different doctors and nurses were coming, asking us different questions and one of them asked us what patient has eaten or drank since morning. My mother had nothing other than a tea but when I informed her about it, she asked milk tea? I said and then they said that we have to wait for another four hours minimum because the tea my mother had contained milk which is a solid food product as per their science. And if there is any food in the stomach then it can cause serious respiratory problems during the surgery.

Actually the doctors had advised my mother the evening before to not eat anything after walking up on the day of surgery but we did not think that milk could also be a problem. The doctors sent me to deposit the surgery fee which was kind of unexpected. They asked me to deposit 50,000 immediately. I had around 20,000 in cash with me and hardly 40,000 in the bank account. The worse thing was that sometimes ATMs do not allow to withdraw more than 25,000 a day. Anyways, somehow it worked, I had money and I deposited it. By the time I returned back at the surgery room, my mother was already inside the operation theater. The doctors had told me that there are two kinds of radiation therapy- internal and external. Internal radiation therapy can be given in case if the lymph nodes are not infected with cancer cells and they might at least put a tube inside the breast during surgery for internal radiation if the case was in favor.

In case if the lymph nodes are also infected then only external radiation was the possibility. The doctors told me that they take a tiny peace of flesh from the lymph node and send it for testing while the surgery is going on, which is basically just a quick checkup, which only gives a quick sense whether lymph nodes are infected or not. The final treatment is planned only after the detailed report which might take up to a week.  The doctors had also said that the final decision about whether to remove the whole breast or just the lump will also be made during the surgery after seeing the level of infection. I think it was the most tense moment of my life when I was sitting outside the operation theater waiting to hear anything regarding what was going on inside. Suddenly a doctor came and said that they have sent the lymph node samples to the lab and the result will come soon and they will inform us.

And then another doctor came and he said that there was no need to remove the whole breast because lump was not so big and the infection was also not serious but the internal radiation was not possible because there was some infection in the lymph nodes. They also said that in such case chemo might be needed, 90%, the final decision will be made once the detailed report has come. By this time my elder brother, Chandan, also arrived from Delhi which was actually a very big psychological support for me otherwise I was going crazy. Chandan is a very matured man and deal such situations better than me. Finally the surgery was finished and I they brought my mother outside the operation theater but she was still kept on the other side of a glass door. I saw her sleeping, actually she was fainted due to anesthesia. Now they asked us to bring some medicine from the dispensary.

Something that I liked about this hospital a lot is that there was no cheating. They make a smart card for all of the patients, when doctors prescribe any medicine then the data is  automatically entered into the smart card. Money is also deposited in advance in the smart card. You just go to the dispensary, put the smart card on a card reader, the people at the counter know what medicine to give, money is also automatically deducted from the smart card, very nice system. Otherwise at BHU it is a very famous scam, and everyone is aware of it, that the doctors give you a list of medicine the evening before of surgery but the real drama starts while the surgery is going on. Different nurses and staffs come, give you a peace of paper and ask you to bring more medicines. They pretend to be in hurry and very serious which is nothing other than an emotional blackmailing.

People have no idea what these medicines are for and its a very human thing that nobody would question those nurses. Families want to do their best by having faith on the doctors and other staffs but in fact they are cheated and looted. Later all those medicines are sold. And its not only the case at BHU but at all the other government and private hospitals in Varanasi and in other cities. Two years ago one of my friends father needed a heart surgery and the nurses at BHU told us that they had all the medicines available with them at the hospital which they were willing to sale for half the printed rate. This is how they use those extra medicines that they get from the patients family while the surgery was going on. Luckily there was no such system at TMC.

Finally we brought all the medicines for my mother and by this time she was already shifted to ICU. The doctors kept my mother under observation for 24 hours and then discharged her from the hospital and advised to see the doctors at the old center of TMC in Mumbai after a week. They had also implanted a surgical drain to drain out the fluid of the wound and we were supposed to have a written record of how much fluid was drained everyday. She was taking medicines, getting better everyday and finally the surgical drain was also taken out after fifteen days or so.

My mother was called at the hospital the very next day of the surgery for a physical exercise training session. In my opinion it was not only for physical exercise but it was also to boost up the moral of the patients through psychological training. They taught some physical exercises to my mother and other than that there were a few volunteers who shared their stories and I think that was very important. They were basically telling all the positiveness about their treatment which helps a lot to prepare the patients for the treatment. By this time the detailed report of lymph node test was also available and doctors had an idea about the treatment. They advised us several other tests which also included whole body bone scan and CT scan.

There is always a very big line for any service at TMC because they have patients have from over India, in fact from out of India as well. Hence the line for bone scan and CT scan was also very big. We got the date for bone scan after five days but nearest date available for CT scan was after 18 days. There was a possibility of getting these tests done at some other hospital but we did not want any excuse so decided to get the test done only at TMC. And in any case my mother was on other medicines and it was not urgent to get those tests done. Finally both of the tests were done, we contacted the doctors again, they looked at the reports and prepared the final medical protocol.

They advised eight cycles of chemo therapy (with two different medicines, four each) at an interval of every twenty days and twenty cycles of radiation therapy with Linear accelerator technology. They have advised five sittings of radiation therapy each week which means it will take around one month. After planning the medical protocol they again asked us if we would like to continue the treatment at BHU but again my mother refused it. By this time she was scared of BHU because during these days she met so many other patients who came from either Bihar or eastern UP (where we come from) and most of them had similar stories that they got their first treatment in their own cities of Bihar or other cities of eastern UP, the doctors immediately removed both breasts, gave several chemos and finally said that the situation was not under their control and they should see the doctors at BHU. And when these patients went to BHU then their case was refereed to TMC.

The other option for us to get treatment away from Mumbai was Delhi because my elder brother lives there. Mumabi was not a big problem for us but it is always the best to live with the family. So we were looking for options where my mother could stay with the family while getting treatment. My elder brother, Chandan, contacted AIIMS in New Delhi but there was a very big problem that the line to get treatment was very big, our number would have come after six months or so. Another thing was that the doctors and other staffs at AIIMS, whom my brother knew personally, said that they did not understand the reason behind bring the patient from TMC to AIIMS when it was possible to get treatment there. They said that TMC is so better than AIIMS that when any case is out of their control then they send their own patients at TMC.

They said that the best thing with TMC is their huge research data which in fact no other hospital in this country has. The other option of getting treatment in Delhi was at some private hospital. Chandan contacted a very big private hospital near to his home called Dharamshila Hospital in Noida. We were shocked to hear that the treatment there was around ten times more expensive than at TMC. The cost of chemo medicines at TMC was around 8,000 each but the cost of the same medicine at Dharamshila was around 60,000 each + other expenses like room charges, doctors fee etc. The cost of radiation therapy at TMC was around 25000 but the cost of the same radiation therapy at Dharamshila was around 2,00,000. Many people told us that these private hospitals always tell you less amount, if they are asking for 7,00,000 then their total final bill would never ever be less than one million.

It was insane, how come someone could be this selfish. Anyways, after reviewing everything we realized that TMC was the best option possible for us and we decided to get proceed with the treatment there only. Anyways, we contacted the doctors again at TMC and informed them about our decision but I still had suspicion in my mind about how chemo would react on my mother’s body who was 67 years old. I asked the doctors about it and just like any other time they gave me proper time and explained everything. They said that age does not matter in getting chemo. The thing which matters the most is the general health of the patient and my mother was perfectly fit. She did not even have diabetes or high / low blood pressure. The doctor said that sometimes they give chemo to even 80 years old person if he is fit and sometimes they can not give chemo to even a twenty years old one if he has health issues.

It was very relaxed feeling to hear getting chemo was not a complicated issue in my mother’s case. Finally they gave all of the dates for chemo and radiation. The date of first chemo came, we arrived at the hospital, deposited the money and proceeded with the medical procedure. The first thing that happens on the day of chemo is a blood test which is called CBC (complete blood count) which is basically a general test that gives information about the cells in the blood. Just like any other service at TMC, the result of this test also takes around 4 hours and we have to meet with the doctors who examine the blood test and then approve getting chemo. After getting approval of the doctors we had to go to the ward where they give chemo. Here the process was not so long, it took around an hour of waiting so that they could prepare the medicine.

In most of the cases chemo is given as an infusion into a vein and my mother’s chemo was also given by inserting a tube with a needle into a vein in her arms. The first chemo was kind of fast, it took hardly 30 minutes and now the doctors asked us to take patients back home. They advised us to see them back after a week. They said that the most common side affects of the medicine given to my mother were upset stomach, vomiting, nausea, constipation, diarrhea, headache and hair loos. They also gave her medicines for upset stomach but advised to not start it if it was needed. Since it was the first chemo they wanted to see how her body was reacting. The first twenty hours were absolutely fine, she was just like any other day but then she felt some problems which were not so big. A little bit of stomach ache sometimes and cramps.

When we saw the doctors after a week they said that was a very normal side affect and there was nothing to worry about. She also started to feel better everyday and finally we brought her back to Varanasi after a week. We did it only because we wanted to her to live close to her friends and family rather than getting bored with my friends in Mumbai. Other side affects were gone but one thing was constant- loosing the hair and the speed was really rapid. We also had to change her diet completely. The doctors advised us to give food full of fiber mostly. We sent her back to Mumabi again a day before the next chemo. The next chemo was also done last the first one. CBD first, then doctors approval and then chemo. But this time my mother made a mistake because of some confusion. She did not take the medicine which was given to her for upset stomach. She was taking some other medicine and the result was serious upset stomach with ache and nausea. 

She was living with my friends and I was in Varanasi because my friends had told me that they would take care of her and I did not need to be present in Mumbai. Actually I make most of my by working in tourism which is a seasonal business in Varanasi and my friends advised me to at least work so there is no problem in finance hence I had sent my mother alone to Mumbai and was hoping my friends to take care of her. Our plan was that she would go to Mumbai, get chemo with help of my friends and then return back to Varanasi after three-four days. Suddenly she called on the third day after getting chemo that she was not feeling good at all. She had serious cramps in her stomach all the time. I went to Mumbai the very next day, spoke someone at the call center of TMC and they asked me if she was taking both of the medicines. I asked my mother the same and she said that she took only one of them.

She had left the one which was good in case of upset stomach. Those people at TMC advised me to give her that medicine. She took the medicine that night and she was absolutely fine the next day. So the whole mistake was that she did not take the proper medicine. After getting second chemo we could easily see how she was loosing her hair very fast. Finally four cycles of first medicine were completed in total of twelve weeks (each chemo is given at an interval of three weeks) and we realized that she does not feel anything abnormal for first twenty four hours, everything stays normal but the she starts getting side affects which could be avoided if post chemo medicines are taken properly. She was a bit sick for a few days and then she was fine, she traveled between Mumbai and Varanasi during the gap between two chemos. In fact she also went to Delhi and Pune once so traveling and staying away from Mumabi was a good decision.

And finally the fifth chemo came when the medicine was going to be changed. I was again worried this time as I did not know how her body would react to this different medicine. Rest of the procedure was same but since the medicine was different, it also took longer than the first four ones. The first four ones hardly took 30 minutes each but the fifth one took almost two hours. They said that the quantity of medicine is same but this one is given slowly. The side affect of this medicine was also different and since it was a different medicine the doctors asked bring the patient back at hospital after a week for followup which means we could not bring her to Varanasi this time.

The doctor said that the side affect of this medicine would be mostly pain in the muscles and it was exactly the same. My mother did not feel any problems with her stomach but felt serious pain in her body, mostly in the legs, around 24 hours after the medicine was given. Since they wanted to see the side affects they did not gave any medicine. They said if there is any problem bring the patient immediately to the hospital. And this pain was so strong that my friends had to bring my mother at the hospital only on the third day after chemo. They again gave two different pills and it was all right. She is getting her sixth chemo today in Mumbai and I hope that it will be all right. Now there are two more chemos left and then radiation therapy will start from 29th of February.

My mother first noticed the lump in her breast sometime in the last week of July and I went to Mumbai on the 12th of August. Its already 11th of January today and my whole experience dealing with this situation was sometimes full of anger, sadness, hopelessness, confusion, weakness, stress and sometimes it was full of hope, satisfaction and strength. I was hopeless, angry, sad and confused until I was in Varanasi consulting BHU or other doctors in my city but I was full of hope and satisfied as soon as I arrived at TMC. The only time I was not comfortable at TMC was when they asked me to sleep at their guesthouse in Kharghar the evening before surgery. The helping behavior of my friends, especially Yogesh, Ashish, Alok and Babu,  gave me so much strength that really helped me and my family to deal with this hard time. Mr. Arun Pathk’s generosity of providing his apartment in Mumbai and his cousin (Sandeep) welcoming and helping nature was also huge help for me.

I will never ever forget all the help of my friends. In Hindu philosophy we have a belief that owe something to someone but can not repay in this life then you do it in your next life and I am sure that I can not repay my friends in this life for sure, especially to Yogesh. Maybe I will have to be reborn, maybe more than once, to repay only my friends. Since the treatment is still going on, the article does not finish here. I will be keep writing experience of dealing with this situation and my only intention behind writing this post is that others might also get benefited otherwise I usually never write about my personal stories. But I have advise for anyone seeking cancer treatment that if you do not have money to go to really big private hospitals then don’t waste your time, just go to TMC and they will take care you. There is no one better than them.

 

कैंसर का ईलाज

मैंने कई बार सोचा की मुझे हिंदी में भी कुछ लेख लिखना चाहिए लेकिन पता नहीं क्यों मैं ये काम कभी नहीं कर पाया I अन्ततः मुझे एक ऐसा सुनहरा अवसर मिला है, जिसे असल में मैं अवसर से ज्यादा अपना दायित्व समझता हूँ, जब मैं अपने आपको ये लेख लिखने से रोक नहीं सका I इस लेख के द्वारा मैं कैंसर के ईलाज सम्बन्धी अपना अनुभव साझा करना चाहता हूँ I असल में मेरी माता जी को ब्रैस्ट कैंसर (स्तन का कैंसर) है जिसका ईलाज अगस्त २०१५ से निरंतर चल रहा है. इस दौरान मैंने बनारस में बी एच यू से लगाये दिल्ली के एम्स, बम्बई के टाटा मेमोरियल एवं इनके अलावा कई और सरकारी और प्राइवेट अस्पतालों का चक्कर काटा I अन्ततः मुझे एक सही दिशा मिली और मेरी माता जी का ईलाज आज सफलतापूर्वक चल रहा है I इस लेख को लिखने के पीछे मेरा केवल एक ही मक्सद है की जिस तरह मैं परेशान हुआ, और मुझे ये भी मालूम है की हज़ारों लाखों लोग मेरी तरह है, वैसा किसी और को परेशान न होना पड़े I

मुझे पता है की आज प्रतिदिन कैंसर से पीड़ित रोगियों की संख्या बढती जा रही है और हमारे देश भारत में, ख़ास कर के, उत्तर प्रदेश और बिहार जैसे राज्यों में इस रोग के ईलाज की कोई समुचित व्यवस्था नहीं है I मेरी माता जी से सर्वप्रथम जुलाई में अपने छाती के उपरी हिस्से में एक छोटी सी गाँठ को महसूस किया I उनको न कोई दर्द था और न ही कोई दूसरी परेशानी I हम लोगों ने सोचा की शायद कोई साधारण सी दिक्कात होगी और हमने उन्हें एक महिला के डॉक्टर के पास भेजा I उस महिला डॉक्टर ने बोला की हमे    बी एच यू में कैंसर विभाग में दिखाना चाहिए I जैसा की हम सब लोग जानते हैं की बी एच यू पूरी तरह से दुर्व्यवस्था से भरा हुआ हॉस्पिटल है इसलिए हम वहां नहीं जाना चाहते थे I बी एच यू  के ही एक रिटायर डॉक्टर है जिनका नाम है डॉक्टर शुक्ला, हमने उनको पहले दिखाना उचित समझा I डॉक्टर शुक्ला ने बोला की हमलोगों को पहले मेमोग्राफी नाम का एक एक्स-रे करना पड़ेगा जिससे की गाँठ की सही स्थिति का पता चल पायेगा I

मेमोग्राफी करने के बाद जब हमलोग वापस डॉक्टर शुक्ला के पास गए तो उन्होंने हमे दो विकल्प दिया- या तो हम बी एच यू  में ऑपरेशन करा लें और वही पर किमो भी कराये या तो वो किसी प्राइवेट हॉस्पिटल में अपने संरक्षण में ऑपरेशन करवाएंगे और बी एच यू  में किमो I उनके कहने का साफ़ मतलब था की ये केस कैंसर का हो सकता है I कैंसर नाम का शब्द सुन कर ही हम लोग अन्दर से एकदम डर गए थे, समझ में नहीं आ रहा था की क्या किया जाए I इसी बीच हमारे एक पडोसी, जो की बी एच यू के कई डॉक्टरों को व्यक्तिगत रूप से जानते थे, मदद के लिए आगे आये I उन्होंने हमे बी एच यू के कैंसर विभाग में कई डॉक्टरों से मिलवाया I बी एच यू के डॉक्टर लोगों ने कुछ एक टेस्ट कराने के लिए कहा जिनमे से एक था FNAC I ये टेस्ट कैंसर के सेल्स की जानकारी प्राप्त करने के लिए किया जाता है I FNAC के रिपोर्ट में ये बात स्पष्ठ हो गयी की मेरी माता जी को शरुआती दौर का कैंसर था I ये सुन कर तो मेरी रूह काँप गयी, मुझे कुछ नहीं समझ में आ रहा था की आगे क्या किया जाये I

बी एच यू के डॉक्टर्स का कहना था की हो सकता है दोनों छातियों को पूरी तरह से निकालना पड़े और उसके बाद किमो और रेडिएशन (जिसको हम देसी भाषा में सेकाई भी कहते है) करना पड़े I मुझे अभी भी इस बात पे विश्वास नहीं हो रहा था की मेरे परिवार में किसी को कैंसर हुआ है I मैंने बनारस में कई और प्राइवेट डॉक्टर्स से संपर्क किया लेकिन लगभग सभी के सभी एक ही बात कहते थे I बनारस में कैंसर के ईलाज से सम्बंधित बी एच यू के बाद यदि किसी दूसरे हॉस्पिटल का नाम यदि कोई जानता है तो वो है रेलवे का कैंसर हॉस्पिटल I मुझसे कई लोगों ने बोला की मुझे एक बार वहाँ के डॉक्टर्स से भी मिलना चाहिए I लेकिन एक नाम जो मेरे दिमाग में हमेशा से था वो था मुंबई का टाटा मेमोरियल हॉस्पिटल I मैंने ये निर्णय ले लिया था की चाहे कुछ भी हो जाये हम बिना टाटा मेमोरियल के डॉक्टर्स से सलाह लिए बिना कोई ईलाज नहीं शुरू करेंगे I एक दिन मैं रेलवे हॉस्पिटल जाने की तैयारी कर रहा था की तभी मेरा एक मित्र आया माता जी का हाल-चाल पूछने के लिए और मैंने उसे बताया की आज मैं रेलवे के हॉस्पिटल जा रहा हूँ I

मैंने उसे टाटा मेमोरियल जाने के संभावनाओं के बारे में भी बताया I उसने मुझसे पुछा की टाटा कब जाना चाहते हो, मैंने बोला कल I तब उसने बोला की अगर कल जाना चाहते तो आज ही क्यों नहीं, एक दिन व्यर्थ करने का क्या मतलब? मुझे उसकी बात बहुत सही लगी और मैं तुरंत मुंबई चला गया I मुंबई में मेरे कुछ बचपन के दोस्त, अलोक और योगेश, रहते है और मैं उन्ही लोगों के भरोसे मुंबई जाने वाला था I मैंने उनलोगों को फ़ोन किया और उन्होंने भी बोला की तुरंत चले आओ I मुंबई पहुचने के बाद योगेश ने बोला की वो व्यक्तिगत रूप से किसी डॉक्टर को टाटा में जानता है और मुझे उनसे मिलवायेगा I अन्ततः मैं टाटा मेमोरियल हॉस्पिटल पंहुचा और वहां पहुचने के बाद मुझे मालूम चला की जिस डॉक्टर को मेरा मित्र जानता था वो मुह के कैंसर के डॉक्टर थे तो इसलिए मेरा उनसे मिलने का कोई औचित्य नहीं था I खैर, टाटा मेमोरियल शुरू से ही जबरदस्त व्यवस्थित हॉस्पिटल लगा I असल में मैंने कभी भी उस तरह का हॉस्पिटल नहीं देखा था I

सब कुछ निहायत व्यवस्थित था, लोग एक दूसरे का मदद करने वाले थे, अगर आप किसी को कुछ बोले तो लोग सुनाने को तैयार थे नहीं तो अगर कोई बी एच यू चला जाए तो जैसे लगता है की हम वह भीख मांगने गए हो I टाटा मेमोरियल की दो इमारतें हैं- एक पुरानी जहाँ आज कल ज्यादातर टेस्ट वगैरह होते है और दूसरी है नयी इमारत जहाँ पर ज्यादातर OPD हैं I मैं इमारत में था और वहां सर्वप्रथम मैं पूछ-ताछ काउंटर पे गया I उन्होंने ने बी एच यू की सारी रिपोर्ट्स देखीं और मुझसे पुछा की क्या मैं केवल डॉक्टर से सलाह लेना चाहता हूँ या मुझे टाटा में ही ईलाज भी करवाना है I शुरू में मैंने बोला की मैं केवल सलाह लेना चाहता हूँ तो मेरा पंजीकरण करके मुझे ब्रैस्ट कैंसर विभाग में डॉक्टर के पास सलाह लेने के लिए भेज दिया जिसका फीस पंद्रह सौ रुपया था I OPD में बहुत ज्यादा भीड़ थी लेकिन चूँकि सब कुछ व्यवस्थित था इस वजह से कोई बहुत ज्यादा परेशानी नहीं हुई I

शायद दो-तीन घंटे बाद मेरा नंबर आया और जब मैं डॉक्टर के कमरे में गया तो वह मेरे और डॉक्टर के अलावा और कोई नहीं था I ये बात मुझे बहुत अच्छी लगी नहीं तो बी एच यू और दूसरे सरकारी हॉस्पिटल में हमेशा डॉक्टर्स के अगल बगल चिड़ियाघर सरीखा माहौल रहता है I वहां मौजूद महिला डॉक्टर ने बी एच यू के सारे रिपोर्ट्स को देखा और फिर मेरी माता जी के जीवन के बारे में कई सवाल पूछने लगी I उनमे से कई का उत्तर मुझे नहीं मालूम था तो मैंने तुरंत बनारस फ़ोन कर के उन प्रशनो का जवाब देने का कोशिश किया I अन्ततः डॉक्टर ने मुझसे बोला की मुझे माता जी को मुंबई बुलाना ही पड़ेगा I डॉक्टर का ये कहना था की कुछ परिस्थियों में डॉक्टर केवल रिपोर्ट के आधार पर सलाह दे सकते हैं लेकिन यदि महिलाओं में छाती का कैंसर है तो मरीज को देखना आवश्यक हो जाता है क्योकि डॉक्टर को गाँठ को छु कर महसूस करना जरूरी होता है इसके अलावा स्तन का आकार देखना भी बहुत जरूरी होता है I

मैंने अपनी माता जी को अगले दिन ही मुंबई बुला लिया और उसके अगले दिन टाटा लेकर गया I डॉक्टर ने मेरी माता जी का परिक्षण किया जिसके बाद उन्होंने बोला की इसमें ऑपरेशन तो करना ही पड़ेगा और आगे का ईलाज कुछ टेस्ट हो जाने के बाद पता चलेगा I उन्होंने मुझे दो विकल्प दिए- या तो मैं टाटा मेमोरियल, लोअर परेल में तीन-चार महीने बाद ऑपरेशन कराऊं और या नहीं तो टाटा मेमोरियल का ही एक दूसरा सेण्टर, जो की नवी मुंबई के खार घर इलाके में है, वहां अगले हफ्ते ही करा लूं I वह डॉक्टर्स ने कहा की दोनों सेण्टर एक ही है, दोनों के डॉक्टर्स एक ही है केवल जगह अलग अलग है I उनका कहना था की लोअर परेल में भीड़ ज्यादा होने के कारण एक नया सेण्टर २००२ में नवी मुंबई में भी शुरू किया गया है I शुरुआत में मुझे ये बात समझ में नहीं आई लेकिन बाद में इन्टरनेट पर रिसर्च करने के बाद और कई दूसरे लोगों से पूछने के बाद ये बात तो साफ़ हो गया की दोनों सेण्टर एक ही है I

चूँकि अब ये बात स्पष्ठ हो चुकी थी की हमलोगों को सारा ईलाज टाटा में ही कराना था इसलिए वहां रजिस्ट्रेशन कराना भी जरूरी था I सर्वप्रथम मैं पूछ-ताछ काउंटर पे गया जहाँ उन्होंने मुझे ईलाज और उससे सम्बंधित सभी खर्चों के बारे में जानकारी दिया I टाटा में मरीजो का दो श्रेणियों में पंजीकरण किया जाता है – १- जनरल और २- प्राइवेट I जनरल और प्राइवेट मरीजों का ईलाज एकदम एक ही तरीके से बिना किसी भेदभाव के किया जाता है लेकिन सुविधाओं में और खर्च में अंतर होता है I यदि कोई प्राइवेट श्रेणी में अपना पंजीकरण करता है तो उसका ईलाज जनरल श्रेणी वाले मरीज से तकरीबन दस गुना महंगा होगा I असल में टाटा मेमोरियल में भारत सरकार के परमाणु उर्जा विभाग के द्वारा सब्सिडी प्रदान की जाती है जो की प्राइवेट श्रेणी के अंतर्गत आने वाले मरीजों को नहीं मिलती है I उन्होंने बताया की अगर मैं मरीज का पंजीकरण जनरल श्रेणी में करूँगा तो ईलाज का खर्च तकरीबन ३०,००० रुपया होगा और अगर मैं प्राइवेट श्रेणी में पंजीकरण करूँगा तो ईलाज का खर्च तकरीबन २,५०,००० रुपया होगा I

मैंने बहुत सोचने के बाद माता जी का पंजीकरण प्राइवेट श्रेणी में करा दिया I मुझे मालूम था की मेरे लिए ये बहुत बड़ा खर्चा होगा लेकिन फिर भी मैंने यही रास्ता चुना I टाटा हॉस्पिटल के हाल में कई एटीएम सी दिखने वाली मशीन थी जो असल में पंजीकरण करने वाली मशीन थी और सभी लोगों को उस मशीन में अपने से मरीज के सम्बंधित जानकारी डालना जरूरी था I जानकारी डालने के बाद मशीन एक पंजीकरण नंबर दे देती है जिसको ले कर वह काउंटर पर मरीज के साथ जाना होता है और उसी नंबर के आधार पर मरीज का पंजीकरण किया जाता है I सारी जानकारी पूछने के बाद हमलोगों को एक स्मार्ट कार्ड दिया गया जिसे हमेशा साथ में रखना जरूरी होता है चूँकि इसी स्मार्ट कार्ड में मरीज के बारे में सारी जानकारी होती है और इसी स्मार्ट कार्ड में ईलाज का सारा पैसा भी जमा किया जाता है I

इसी बीच ऑपरेशन के डॉक्टर ने हमसे कई टेस्ट कराने के लिए कहा जिनमे से कुछ टेस्ट पहले ही बी एच यू में किये जा चुके थे जिसका रिपोर्ट हमारे पास था लेकिन टाटा के डॉक्टर्स ने बोला की अगर हम टाटा में ईलाज कराना चाहते है तो हमे वहां फिर से सारा टेस्ट कराना पड़ेगा I वो लोग बी एच यू के टेस्ट रिपोर्ट से संतुस्ट नहीं थे और मुझे लगता है की बी एच यू की दुर्व्यवस्था को देखते हुए कोई भी वहां की किसी रिपोर्ट से संतुष्ट नहीं होगा I हम लोगों ने दोबारा से सारा टेस्ट टाटा में करवाया और रिपोर्ट आने के बाद डॉक्टर से मिल कर खारघर वाले सेण्टर में अगले सप्ताह का ऑपरेशन का डेट ले लिया I ऑपरेशन से पहले मुझे केवल एक बार खारघर जा के वह के डॉक्टर्स से मिलना था जो मैं शायद अगले दिन ही कर लिया I वह के डॉक्टर्स ने मुझसे बोला की ऑपरेशन के एक दिन पहले मरीज को भर्ती करा देना I मुझसे ये भी बताया गया की मरीज को ऑपरेशन के बाद किमो और रेडिएशन देना पड़ सकता है जिसकी सही जानकारी ऑपरेशन के बाद पता चलेगी I

अन्ततः ऑपरेशन के एक दिन पहले हमलोग खारघर पहुच गए, डॉक्टर ने कुछ थोडा बहुत चेकअप किया और बोला की कल सुबह सात बजे हॉस्पिटल आने के लिए I डॉक्टर ने ये भी बोला की ऑपरेशन वाले दिन सुबह कुछ भी नहीं खाना है, पेय पदार्थ ले सकते हैं I सब कुछ ठीक था लेकिन तभी एक बहुत बड़ी दिक्क़त हो गयी की हॉस्पिटल में प्राइवेट वार्ड में कोई भी बेड या कमरा खाली नहीं था I डॉक्टर्स ने बोला की हमलोगों को जनरल वार्ड के गेस्ट हाउस में रात बितानी होगी I सुनने में ये कोई बड़ी बात नहीं थी लेकिन जब हम लोग गेस्ट हाउस में पहुचे तो वहां का नज़ारा देख कर मेरा तो होश ही उड़ गया I वहां पर पहले से ही काफी ऐसे मरीज थे जिनका ऑपरेशन हो चुका था, अभी उनका घाव खुला हुआ था और एक कमरे में आठ बेड लगे हुए थे I सबसे बड़ी दिक्क़त ये थी की उस कमरे की खिड़कियाँ भी बंद की गयी थी ताकि मरीजों को ठंढ न लगे जिसके वजह से कमरे में अजीब तरह की बदबू और घुटन हो रही थी I

वो नज़ारा देख कर कोई भी डर सकता था और मैं ये नहीं चाहता था की मेरी माता जी को भी ऑपरेशन के पहले किसी तरह कोई डर हो I मैंने तुरंत निर्णय किया की मैं किसी हालत में वह रात नहीं गुजारूँगा I भाग्यवश मेरा एक दूसरा बनारस का दोस्त, बाबु, भी उस समय मुंबई में ही था और उसके एक रिश्तेदार खारघर में ही कहीं रहते थे जिनके बारे में बाबु ने मुझे बताया था I मैंने तुरंत बाबु कोई फोन किया और बाबु भी खारघर आ गया और हमलोगों को अपने रिश्तेदार के घर ले गया I भगवान की दया से इन रिश्तेदार का घर भी हॉस्पिटल से ज्यादा दूर नहीं था I उस रात मैं सो नहीं पाया था, रात भर सोचते हुए ही गुजर गया, सूर्योदय हुआ और हमलोग तैयार होकर हॉस्पिटल पहुच गए I डॉक्टर्स ने मुझे पहले ही बताया था की रेडिएशन की जरूरत पड़ सकती है I रेडिएशन भी दो तरह से होता है – १- अंदरूनी रेडिएशन और दूसरा बाहरी रेडिएशन I

अंदरूनी रेडिएशन में डॉक्टर्स ऑपरेशन के समय ही स्तन में एक ट्यूब डाल देते है जिसके सहारे रेडिएशन दिया जाता है लेकिन इसकी संभावना का पता ऑपरेशन के समय ही पड़ता है I असल में हर किसी को बगल में (कांख ) में लसिका गाँठ होती है, जिसे अंग्रेजी में लिम्फ नोड कहते है, और अगर लिम्फ नोड में कैंसर का इन्फेक्शन नहीं हो तो इस परिस्थिति में ट्यूब के द्वारा अंदरूनी रेडिएशन किया जा सकता है और अगर लिम्फ नोड में इन्फेक्शन हो तो इस परिस्थिति में अंदरूनी रेडिएशन की संभावना नहीं होती है और इस इन्फेक्शन का पता केवल ऑपरेशन के दौरान ही चलता है I डॉक्टर्स ने ये भी हमलोगों को बताया था की केवल गाँठ निकालेंगे या पूरा स्तन ये भी ऑपरेशन के समय ही पता चलेगा I खैर, एक हमलोग अपनी बारी का इंतज़ार कर ही रहे थे की तबतक एक डॉक्टर आये और मुझसे बोले की अपने स्मार्ट कार्ड में पैसा डलवा दीजिये I

मैं अपनी माता जी को ऑपरेशन थिएटर के बाहर छोड़ कर कार्ड में पैसा डलवाने चल गया I यहाँ एक और दिक्क़त हुई, मुझे अंदाज़ नहीं था की कितने पैसों की जरूरत पड़ेगी I मेरे पास जेब में शायद २०,००० रूपये थे और बैंक अकाउंट में ३५-४०,००० I मुझसे तुरंत ५०,००० जमा करने के लिए कहा गया और सबसे बड़ी दिक्क़त ये थी की सभी एटीएम एक दिन में २५,००० से ज्यादा रूपये नहीं देते हैं I खैर किसी तरह से मैंने पैसा जमा कर दिया और जब वापस ऑपरेशन थिएटर गया तो मेरी माता जी को पहले ही अन्दर ले जाया चुका था I थोड़ी देर बाद एक डॉक्टर आये और बोले की मेरे माता जी के लिम्फ नोड में इन्फेक्शन है जिसके वजह से अंदरूनी रेडिएशन नहीं हो सकता है I डॉक्टर ने ये भी बताया की चूँकि गाँठ बहुत बड़ी नहीं थी इस वजह से पूरा स्तन हटाये बिना ही ऑपरेशन किया गया है जो सुन के मुझे काफी अच्छा लगा I

डॉक्टर्स ने मेरी माता जी को केवल एक रात हॉस्पिटल में रखा और उसके बाद घर वापस जाने की छुट्टी दे दी I उन्होंने बोला की आगे का सारा ईलाज टाटा मेमोरियल के लोअर परेल वाले हॉस्पिटल में होगा I उनलोगों ने ऑपरेशन के दौरान ही पेट में एक नली लगा दी थी जो एक छोटे से डब्बे से जुडी हुई थी और इस नाली से हमेशा थोडा थोडा खून के रंग का तरल पदार्थ निकलता रहता था I डॉक्टर्स ने हमलोगों से बोला की जितना भी तरल निकलेगा उसे हमे एक जगह लिख कर रखना है और डॉक्टर को दिखाना है I ऑपरेशन के अगले दिन ही हमे लोअर परेल वाले हॉस्पिटल जाने के लिए भी बोला गया जहाँ एक व्यायाम से सम्बंधित कार्यशाला में मरीज को ले कर जाना था I ये कार्यशाला प्रतिदिन हॉस्पिटल में आयोजित की जाती है लेकिन उसमे वही लोग भाग ले सकते हैं जिनका ऑपरेशन हुआ हो I वो कार्यशाला मुझे शारीरिक व्यायाम से ज्यादा मनोवैज्ञानिक व्यायाम की लगी I

वहां व्यायाम के बारे में बताने वाले कुछ डॉक्टर थे जिन्होंने ऑपरेशन होने के बाद करने वाले व्यायाम के बारे में बताया I उन्होंने ये भी बोला की ऑपरेशन के बाद व्यायाम बहुत ज्यादा जरूरी है नहीं तो ऑपरेशन की अगल बगल वाली नसों में तनाव हो सकता है जो की आगे चल कर बहुत घातक हो सकता है I डॉक्टर्स के अलावा वहां कुछ एक लोग ऐसे भी थे जो अपने कैंसर का ईलाज करा कर साधारण जीवन व्यतीत कर रहे थे I उनलोगों ने भी अपने अनुभवों को मरीजों के साथ साझा किया जिससे की मरीजों का मनोबल बढ़ सके और मुझे व्यक्तिगत रूप से ये बात बहुत ही अच्छी और जरूरी लगी I इसी बीच डॉक्टर्स ने किमो शुरू करने के पहले होने वाले जांचों को लिख दिया जिसमे बोन स्कैन (पूरे शरीर के हड्डी का स्कैन) और सी टी स्कैन भी शामिल था I बाकी और जांचो की तरह ही इनदोनो जांचो के लिए बहुत लम्बी लाइन थी I बोन स्कैन के लिए एक सप्ताह और सी टी स्कैन के लिए पंद्रह दिन बाद का नंबर मिला जो की बहुत बड़ी मुश्किल नहीं थी क्योकि किसी हालत में भी किमो जल शुरू होने वाला नहीं था I

अगर हमलोग चाहते तो बाहर भी दोनों जांच करा सकते थे लेकिन हम लोगों ने टाटा मेमोरियल में ही जांच कराना उचित समझा I इस दौरान ऑपरेशन के वक़्त डॉक्टर्स ने घाव के पास से तरल पदार्थ निकालने के लिए जो नाली लगायी थी वो भी निकाल दी गयी I अबतक सारी रिपोर्ट्स भी आ चुकी थी जिसमे लगभग पंद्रह दिन लगा I अन्ततः हमलोग डॉक्टर्स के पास फिर गए और उन्होंने सारी रिपोर्ट्स का अध्ययन करने के बाद हमे बताया की मेरी माता जी को आठ बार किमो लगेगा जो की हर 21 दिन के अंतर पर दिया जायेगा I किमो एक विशेष प्रकार की दवा होती है जो की कैंसर के रोग में मरीजों को दी जाती है I अलग अलग मरीजों को उनके रोग एवं स्वास्थ के हिसाब से अलग तरह की दवा दी जाती है I मेरी माता जी को दो अलग तरह का किमो दिया जाना था, शरुआत के चार किमो अलग और अंत के चार किमो अलग I मैंने किमो के बारे में कई किस्से सुने थे जिसे लेकर मैं डरा हुआ था I असल में मुझे कोई भी किस्सा याद नहीं था फिर भी मैं बहुत डरा हुआ था I

मेरा सबसे बड़ा दर मेरी माता जी की उम्र को लेकर था I मैंने डॉक्टर से पुछा की क्या एक ६७ साल की महिला को किमो देना सुरक्षित होगा? और डॉक्टर ने बोला की किमो का किसी व्यक्ति के उम्र से कोई लेना देना नहीं होता है, सब कुछ निर्भर करता है व्यक्ति के स्वास्थ पर I अगर व्यक्ति स्वस्थ है तो 80 साल के बुजुर्ग को भी किमो दिया जाता है और अगर व्यक्ति अस्वस्थ है तो 20 साल के नौजवान को भी किमो नहीं दे सकते है और चूँकि मेरी मेरी माता जी का स्वास्थ बिलकुल ठीक था, उनको सुगर या ब्लड प्रेशर तक नहीं था, इसलिए किमो देने में कोई दिक्क़त नहीं है I ये सुनकर हमलोगों को काफी तस्सली हुई I किमो के डॉक्टर्स से हमलोगों को रेडिएशन के डॉक्टर से भी मिलने को बोला I रेडिएशन के डॉक्टर्स ने हमको बताया की किमो ख़त्म होने के बाद 20 रेडिएशन भी देना पड़ेगा जो की हफ्ते में 5 दिन होगा I

सभी कुछ निर्धारित होने के बाद डॉक्टर्स ने हमको दो विकल्प दिए- या तो हमलोग किमो और रेडिएशन दोनों टाटा मेमोरियल में ही कराये या तो वो सारा कुछ तैयार कर देंगे और आगे का किमो हम बी एच यू में ले सकते हैं जिसे सुनते ही मेरी माता जी ने डॉक्टर से हाँथ जोड़ कर बोला की वो टाटा छोड़ कर कहीं नहीं जाना चाहती है और डॉक्टर लोग हंस कर बोले की वही लोग सारा ईलाज करेंगे I और वैसे भी मेरी माता जी का रेडिएशन बी एच यू में नहीं हो पता क्यों की रेडिएशन की मशीन भी कुछ अलग अलग तरह की होती है और जो रेडिएशन मेरी माता जी को दिया जाने वाला था वो बी एच यू में उपलब्ध नहीं था I मेरी माता जी को दिया जाने वाला रेडिएशन का नाम था लिनिअर एकसेलरेटर I ये सुविधा हिंदुस्तान में केवल गिने चुने हॉस्पिटल्स में ही उपलब्ध है I

मेरी माता जी इधर बीच बी एच यू से इस वजह से और ज्यादा डर गयी थी क्योकि टाटा मेमोरियल जाते जाते उनकी मुलाकात कई ऐसे लोगों से हुई जो की उत्तर प्रदेश और बिहार के रहने वाले थे I उनसभी लोगों ने शुरू में अपना ईलाज अपने शहरों में कराया था लेकिन वहां के डॉक्टर्स और हॉस्पिटल ने पूरा केस बिगाड़ दिया जिसके बाद वो बी एच यू गए लेकिन चूँकि हालत पहले ही बहुत ज्यादा ख़राब हो चुकी थी इस वजह से बी एच यू ने भी टाटा मेमोरियल केस भेज दिया I मैं खुद कई ऐसे लोगों से मिला जो हिन्दुस्तान के अलग अलग कोनों से आये हुए थे लेकिन उन सबकी कहानी एक ही थी की उनके शहर के डॉक्टर्स ने सारा केस बिगाड़ दिया I खैर, रेडिएशन के डॉक्टर्स ने ही किमो और रेडिएशन के बाद होने वाले सामान्य दुष्प्रभावों के बारे में भी बता दिया I उन्होंने ने बोला की किमो का प्रभाव अलग अलग व्यक्तियों पर अलग अलग हो सकता है लेकिन जो सबसे सामान्य दुष्प्रभाव है उनमे शरीर में दर्द, पेट से सम्बंधित दिक्क़तें, उलटी होना या महसूस होना और  बाल झाड़ना आम बात है I

अलग अलग किमो भी अलग अलग प्रभाव करता है लेकिन ये सारी दिक्क़तें किमो ख़त्म होने के बाद धीर धीर ठीक हो जाती है, बाल भी दोबारा से २-३ महीने बाद से वापस आने लगते हैं I डॉक्टर्स ने मुझे बताया की पूरा ईलाज होने में तकरीबन 6 महीने का वक़्त लगेगा जो की मेरे लिए बहुत आसान नहीं था I मेरा बड़ा भाई दिल्ली में रहता है और हमलोगों ने सोचा की यदि संभव हो तो आगे का ईलाज दिल्ली में भी करा सकते हैं, इसलिए हमने डॉक्टर्स से 2 दिन का समय माँगा और इस बीच मेरा बड़ा भाई दिल्ली के एम्स हॉस्पिटल में भी संपर्क किया I एम्स में किमो के लिए तकरीबन 6 महीने की लाइन थी और एम्स के डॉक्टरों ने हमसे बोला की यदि हम टाटा मेमोरियल छोड़ कर एम्स में ईलाज कराएँगे तो शायद ये उनके जीवन का पहला ऐसा केस होगा होगा I वहां के डॉक्टर्स का कहना था की जब कोई केस उनसे नहीं संभल पाता है तब वो टाटा मेमोरियल की मदद लेते हैं और यदि हमारे पास रहने की व्यवस्था हो तो हमे टाटा मेमोरियल में ही ईलाज कराना चाहिए I

फिर हमने सोचा की दिल्ली के ही किसी प्राइवेट हॉस्पिटल में भी संपर्क किया जाये तो हमलोगों ने नॉएडा के एक बहुत प्रसिद्ध हॉस्पिटल, जिसका नाम धरमशिला हॉस्पिटल है, में संपर्क किया I वहां का खर्च सुन कर हमलोगों के होश ही उड़ गए, वहां हर एक चीज़ टाटा मेमोरियल से लगभग दस गुना ज्यादा महंगा था I जो किमो की दावा टाटा में 6-8000 रूपये की थी वही किमो वहां 80,000 रूपये की थी, जो रेडिएशन टाटा में तकरीबन 20-25,000 रूपये में होता उसी रेडिएशन का धरमशिला में 2,50,000 रूपये माँगा जा रहा था I अन्ततः हमलोगों ने निर्णय किया की सारा ईलाज टाटा में ही कराएँगे I हमलोग फिर से टाटा गए और वहां किमो का डेट ले लिए I हमलोगों को किमो के दिन जल्दी सुबह बुलाया गया था क्योकि किमो के दिन सुबह एक खून का साधारण सा जांच होता है जिसको सी बी सी (कॉमन ब्लड काउंट) बोलते हैं, इस टेस्ट के द्वारा खून में सेल्स का पता लगाया जाता है I

टाटा में इसकी रिपोर्ट आने में तकरीबन 4-5 घंटे का समय लग जाता है, फिर उसके बाद वो रिपोर्ट ले कर किमो के डॉक्टर के पास जाना होता है और अगर रिपोर्ट सही है तो वो किमो के लिए लिख देते हैं I फिर उसके बाद टाटा की पांचवी मंजिल पे जाना होता है जहा किमो चढ़ाया जाता है I वहां पर भी नंबर लगाना होता है, टाटा में सोमवार को बहुत ज्यादा भीड़ होती है क्योकि इमरजेंसी को छोड़ कर हॉस्पिटल शनिवार और रविवार को बंद रहता है, फिर भी 2-3 घंटे में नंबर आ ही जाता है I चूँकि अलग अलग मरीजों को उनके रोग के हिसाब से अलग अलग किमो दिया जाता है इसलिए किमो के विभाग में पंजीकरण कराने के बाद दावा लेने के लिए लाइन में लगना पड़ता है और यही ज्यादा समय लगता है I जब दवाई तैयार हो जाती है तो उसको एक मरीज को नसों में चढ़ाया जाता है (जैसे साधारण पानी या खून चढाते हैं ) I

अलग अलग किमो को चढाने में लगने वाला समय भी अलग अलग दवा पर निर्भर करता है I मेरी माता जी को शुरू में जो किमो चढ़ाया गया उसमे केवल 30 से 45 मिनट लगता था I किमो चढ़ने के तुरंत बाद मरीज को घर भेज दिया जाता है लेकिन किमो के बाद होने वाली परेशानियों ( जैसे सर दर्द, उलटी, बुखार, शरीर दर्द इत्यादि ) के लिए डॉक्टर कुछ दावा भी देते है I मेरी माता जी को शुरुआत के 24 घंटो तक कुछ भी अलग महसूस नहीं हुआ लेकिन उसके बाद किमो का प्रभाव समझ में आया I उनके पेट में मरोड़ सा होने लगा, हल्का बुखार भी हो गया और कब्ज भी हुआ लेकिन जब उन्होंने डॉक्टर के द्वारा दी हुई दवाओं को लिया तो ये सारी दिक्क़तें ख़त्म होने लगी I साधारणतयः उनको ये दिक्क़तें किमो के 3-4 दिनों तक रहती है और उसके बाद धीरे धीरे सब कुछ ठीक हो जाता है, लेकिन तभी तक अगले किमो का भी दिन आ जाता है I

खैर शुरुआत के चारो किमो ठीक से बीत गया और इस बीच मेरी माता जी किमो लेने के बाद बनारस आ जाती थी और किमो एक दिन पहले फिर मुंबई पहुच जाती थी I पांचवे किमो से दूसरी दवा दी जाने वाली थी और डॉक्टर्स ने हमे बताया की इस किमो में पेट से सम्बंधित कोई ख़ास दिक्क़त नहीं होती है लेकिन शरीर में दर्द इस किमो का बहुत ही साधारण सा दुष्प्रभाव है और ठीक ऐसा ही हुआ भी I जब मेरी माता जी को पांचवा किमो चढ़ाया गया उसके 24 घंटो बाद उनको पूरे शरीर में जबरदस्त दर्द होना शुरू हुआ, ये दर्द कमर से नीचे बहुत ज्यादा था I अन्ततः हमको उन्हें टाटा के इमरजेंसी वार्ड में ले जाना पड़ा जहाँ डॉक्टरों ने कुछ दवा दिया जिससे दर्द धीरे धीरे ठीक हो गया I मेरे माता जी का ईलाज अभी भी चल रहा है, तीन किमो बाकी है और उसके बाद रेडिएशन थेरेपी, पूरा इलाज अप्रैल में ख़त्म होगा और मैं उसके बारे में भी आगे लिखूंगा I

ये लेख लिखने मेरा एक ही मकसद था की यदि किसी को टाटा हॉस्पिटल या कैंसर ईलाज से सम्बंधित कोई जानकारी चाहिए हो तो वो मेरे अनुभव के आधार पर पर अपने ईलाज के बारे में कोई निर्णय ले सके और मुझे उम्मीद है की ये पोस्ट कुछ लोगों की मदद जरूर करेगा I लेकिन एक बात मैं सभी लोगों से बोलना चाहूँगा की यदि आप किसी का भी कैंसर का ईलाज करना चाहते है, और अगर आपके यहाँ अच्छा हॉस्पिटल नहीं है, तो अपना समय मत व्यर्थ कीजिये I सीधा टाटा मेमोरियल जाइए और वो लोग आपका ईलाज करेंगे I कई हॉस्पिटल भटकने के बाद मेरा एक मद है की टाटा मेमोरियल में जो लोग काम करते है वो सच में भगवान् से कम नहीं है I हो सकता है आपको मुंबई में रहने खाने की दिक्क़त होगी लेकिन जीवन से ज्यादा महत्त्वपूर्ण कुछ नहीं होता और एक बात हमसभी लोग जानते हैं की कैंसर का ईलाज जितना जल्दी शुरू हो उतने बेहतर तरह से आदमी ठीक होता है I जय हिन्द I