Today, Claire and I visited the NACO (National AIDS Control Organization) center at BHU to obtain data on HIV patients in Varanasi for our upcoming school workshop. Initially, the counselor refused to provide any data and directed us to seek permission from the head of the department first. Despite informing her that we were from an NGO, she remained unwilling to share any information. We then went to the head of the department’s office but were unable to meet him as he was occupied with another matter.
We spent two hours waiting in the counselor’s room, where we observed many people coming in for testing. I met a girl who is HIV-positive and now volunteers at the NACO center. After spending some time with Claire, the counselor warmed up to us and eventually provided the information we needed. I suspect her change of heart was influenced by Claire’s presence. She mentioned that NACO has testing centers in many districts across Uttar Pradesh, but the BHU center is the only one in Poorvanchal with an ELISA testing facility.
Poorvanchal is a region in Uttar Pradesh comprising seventeen districts. I was surprised to learn that people seeking HIV tests from across the region ultimately come to the Varanasi center. Although testing is available in their own districts, those results are not considered final. The ELISA test, which is the most reliable, is only available at the BHU center in Poorvanchal. The counselor noted a significant increase in HIV cases over the past few years. When she started her job nine years ago, they saw around five to six hundred people seeking tests each month. Today, that number has risen to between one hundred fifty and two hundred.
She also reported that a few years ago, they had fifty to a hundred positive results each month, but now they have at least twenty-five positive results every day. This increase was staggering and hard to believe. Interestingly, these figures only reflect those who have been referred by doctors; it doesn’t account for individuals who may be unaware of their HIV status. The counselor expressed concern that the number of positive cases will likely continue to rise due to inadequate government action.
She was dissatisfied with her job, citing a low salary. According to her, while WHO provides substantial funding to the Indian government, and then the Indian government allocates money to the Uttar Pradesh government and NACO, much of the funding is consumed by politicians and others involved in the project. One positive aspect of their work is that they now provide free ARVs (antiretrovirals) to HIV-positive patients, but only to those with a CD4 count below a critical level. Although I inquired about the specific CD4 threshold, she did not disclose it.